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Author Topic: Alexandra - External Tibias - Various Doctors - 2009 - Ilizarov Centre Kurgan  (Read 16297 times)
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Centerilizarov.alexandra
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« on: November 07, 2010, 02:02:23 AM »

Greetings!
Iím sorry of my English, but hope youíll understand what I write.  Im sure my english is very funny but  hope is understandable  Grin

I was reading this forum long time ago and decide to write for tell story of experience of my daughter and my work.  Im from Russia but last 5 years I live in Spain.  My daughter was born with rickets familiar and as consequence of illness she had deformation of both legs (affected both femurs and both tibias).  One year ago she was operated in Spain in both tibias and doctor used method of external fixation Orthofix.  It is long story, my daughter had all complications what could to have.  Infection was eating her legs, temperature of 38-40ļC about 2 months, pus, injured around pins was smelling very bad, in the holes was seems bones, she still don't feel some zones of foots (it happened because doctor turned off her foots while operation, would to  do it mm of mm day of day).  Also doctor recommended to us put to legs ice for reduce pain, it was worse what he could to recommended with infection.  He  didnít offer none treatment and I shall to looking for other clinic.  So I find Centre of Ilizarov.  We crossed 6 thousands kilometers for save her legs.   We were staying in Center of Ilizarov 9 months.  It was very hard period in the first for her and in the second for all our family.  But doctors of that clinic save her of infection and make correction of tibias.  In next year we again going to go to Kurgan for continue correction, she need 2 fazes of treatment for correct her femurs.  Now we are ok, my girl start school.  We doing rehabilitation every day and massages.  Now  she enjoy her life as she can, meeting with friends, family, make homework, play with her pets as all of normal children Smiley

  While we were stay in the Centre of Ilizarov I knew much patientís include some who was doing LL, there is one floor of 30 beds for LL and it always full.  Patients are from all parts of world, some was from China, England, USA, Japan, Serbia and Italy.  Much doctors speaking english and some instructors of rehabilitation.  Centre of Ilizarov is very big hospital, have 24 section of traumatologia of 1200 beds.  
 Work of doctors of that clinic is great.  Each year they are saving thousands of people who already didnít have any hopes to have normal life without pain and defects of bones.  There working really best professionals of the would.  They know how to prevent complications and guarantee result positive.  With one patient working few doctors and if one of them have some doubts he always can ask council.  

The Section International offer to me contract, my work is search patients for clinic in the Spain.  This is what I doing now.  From behining i thinked that will have clients only in Spain but  I already have a few of all parts of would Mexico, Ecuador, Italy, Cyprus, Brazil.  If somebody will be interesting to know more of LL in the Center of Ilizarov  feel free to ask me and I help with information as I can.  Also I want to say what patients donít pay to me, any information is free for them.  If somebody will decide to come to Centre of Ilizarov I need only his name and date of visit for make inform of my work and nothing more.  Also i can be useful for organization of travel, there some planes of russian companies who fly to Kurgan and its a bit difficult to find information in internet about them and I can to help to find cheaper tickets.  As tell before I was staying in Kurgan 9 months and I think could to help with some information about this city.  

Iím writing my blog about Centre of Ilizarov, treatment, operations, travel to Kurgan, residence in the clinic while treatment, comparison of method of Ilizarov and Orthofix.  My blog is in Spanish but is easy to translate with Google Translator.  Here I left address for persons who are interesting to know more about Centre of Ilizarov.
NOT ALLOWED translate. google. com/translate?hl=es&sl=es&tl=en&u=http%3A%2F%2Fhistoria-de-raisa-centro-ilizarov. blogspot. com%2F


 This blog Im writing like the patient and like representative of clinic.  
  
Iím sorry again of my English, its terrible, some years ago I was speaking enough well but without practice it lost.  Really is not difficult for me to read and understand posts in forum. . .  but writeÖ you see how I writing lol  
Thank very much to administrators of site, its really very useful place Smiley None site of internet have not so much information.  

PS I have a lot of photos while we were staying in Centre of Ilizarov, if somebody interesting I could to post here.  
thanks of attention  Wink
« Last Edit: April 14, 2011, 12:08:29 PM by SysOp » Logged
ashjay_jay
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« Reply #1 on: November 07, 2010, 05:14:56 AM »



    To cure infection what action did doctor took?

     one thing is to remove the pin or strong antibiotic or inject antibiotic directly through pin...

      what did they do? to cure infection/...
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Centerilizarov.alexandra
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« Reply #2 on: November 07, 2010, 02:41:38 PM »

She was operated first time 16 of july 2009.  Temperature she had from first day after operation 37,5-38ļC.  Doctor says its normal reaction of organism and In 5 days after operation we already go at home.   In one week after operation already start purulent process.  Was smelling terrible, like a dead animal we has in the home.  Holes around pins become bigs 5-7 cm in diameter.   Urgency i go to doctor.  He says to take antibiotics (pills) and for quit pain recommended to put ice.  So pass 1 week more.   I still was believing to him.   We has about 4 consults more with him and  he was saying that everything is ok, but daughter has temperature 37-38ļC and with each day more pus.  15 of august he decide to operate her again.  He cleaned pus, sew!! holes around pins,  and take off one pin.  And now pus has not other way to go out and start go to bones.  Fixator Orthofix have 4 pins and when doctor take off one of it part of bone start to move and go out.  Fixator already didn't keep it.  In the end of august i understand that this doctor have not any idea about external fixation and i start to search other clinic.  So i find Centre of Ilizarov.  The doctor of what clinic says to me that we lost very much time and urgency have to save legs of Raisa (she is name is Raisa :) ).  First of september we already came to Kurgan.  First that did doctor is removed fixators and start to inject antibiotic (she still was taking pills) and vitamins.  2 months we stayed in Section Purulent Traumatologia.  And after to cure infection to her put fixators of Ilizarov for correct deformation.  Instead to correct deformations doctor of Spain made them more complicate.  Next 2 months was correction of bones and later she was learning to walk.  Ops forget to say that she didn't walk about 6 months, was staying in bed.  There working magics instructors in the Centre of Ilizarov.  There 3 gyms in Centre of Ilizarov.  Our instructor was like a God for me.   Day of day she learned my daughter to move legs.  Process of get knees took only 1,5 months.  Later she start to make to get up my  girl.  In 2 months she already start make first pass  :) In 3 months she was running with others children's  in hospital  Grin

PS if somebody can explain to me how to post photos here? I would like to put some before and after treatment.   
 
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Centerilizarov.alexandra
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« Reply #3 on: November 07, 2010, 02:47:04 PM »

Fixator of Ilizarov have grand advantage, if one pin infected then doctor can just remove it and fixator dont left to be stability.  But with Orthofix is impossible to do, if take off one pin fixator already will not fix bone.   
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jailair
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« Reply #4 on: November 07, 2010, 03:12:21 PM »

Hello alexandra,

I'm ashamed that something like that took place here, where I live.

It's really hard to believe while some of our medical specialists and clinics are recognized worldwide.

sadly, I suppose butchers exist everywhere.

Please, could you tell me where your daughter was treated exactly? and also could you give me the clinic and doctor's names?


many thanks..and thanks for the ifno you've provided as well.
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Centerilizarov.alexandra
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« Reply #5 on: November 07, 2010, 03:42:45 PM »

Hospital de Nuestra SeŮora Candelaria, Santa Cruz TENERIFE.
Doctor Jorge Hodgson Ravina.
In august we denounce negligence. And also invite us to television and newspaper. After what more familyīs contact us and we find out that we are not alone. There are much stories like our in Spain. For today we are 11 familyīs. What i wish is stop doctors to use method Orthofix  for correct deformations of children. The most sad of our stories that suffer children. My daughter has 11 years old and few children has 3-4 years old when started treatment. At the end everything that get my daughter is
1. Osteomielitis chronic
2. Much deformations of both tibias
3. Neuropatia of both tibias (she don't feel foot and still cant move it like before operation)

Is very big luck that we find Centre of Ilizarov, if not here in Spain everything what offer is amputate leg. I know few persons who lost leg. Is sad that they didn't knew that is possible to save it.
Im very sorry to tell it here, but hope what information can be useful for more persons who still looking for clinic. Don't do LL in clinic who offer to do it cheap, and best is to know at least few patients. It will be impossible to back, we paying with our healthy.


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Centerilizarov.alexandra
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« Reply #6 on: November 07, 2010, 03:57:08 PM »

and one thing more what get my girl is deep scars in both legs. They are 1-2 cm of deep and is hard to remove with laser. From beginning i knew that she will have it after operation but i was thinking we will can to delete it, but after Orthofix they are too deep and is very complicate. For men it not would be so important but for small girl is hard to accept what defect.
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Centerilizarov.alexandra
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« Reply #7 on: November 08, 2010, 01:11:50 AM »

radiography before operation
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Centerilizarov.alexandra
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« Reply #8 on: November 08, 2010, 01:16:28 AM »

after operation


after remove one pin of Orthofix, bone going out


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Centerilizarov.alexandra
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« Reply #9 on: November 08, 2010, 01:20:06 AM »

after remove one pin of Orthofix, bone going out.
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Centerilizarov.alexandra
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« Reply #10 on: November 08, 2010, 01:48:59 AM »

After remove fixators Orthofix bones join incorrect



Last one after treatment in Centre Ilizarov. For correction of deformation doctor did 3 osteotomias more on each tibia. And during 1 month was moving bones 1mm at the day. Really is something of art, i was looking to all what process and didn't believe to my own eyes that is possible restore her legs and make that you see in last photo


We are at home already 5 months and each day i remind our doctor from Russia Fedor Fedorovich Gofman and instructor of rehabilitation Ignatieva Natalia Ivanovna.

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« Reply #11 on: November 08, 2010, 01:55:39 AM »

I'm gald you guys are getting things back on track. How much did the procedure cost in Russia?
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« Reply #12 on: November 08, 2010, 02:10:23 AM »

thx Moshe Smiley
My daughter have russian nationality and for her treatment was free  Smiley  I was paying only of my bed, it was around 30 euros per day and all what months i was staying in clinic and take care of her.
LL of 5-7 cm cost 23,900 euros: include  room individual during 6-8 months of treatment, operation on both tibias, food, rehabilitation and medicaments.
LL of 8-10 cm 29,800 euros : include  room individual during 7-9 months of treatment, operation on both tibias, food, rehabilitation and medicaments.
Tomorrow i going to post photos of clinic and tell more things about service, rooms and Centre Iliarov  Smiley
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« Reply #13 on: November 08, 2010, 02:54:46 AM »

Thanks for the info. Thats too much for me.  To lengthen in russia it would cost me around 45k US or possible more.

Pricing is all over the place. Theres another clinic in russia that charges half that. I realize part of it is reputation but double? seems crazy
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« Reply #14 on: November 08, 2010, 03:56:05 PM »

As I write before I working for Centre of Ilizarov and can inform you only about what clinic, really don't know about other clinics in Russia, but here very much members and you could ask anyone about prices  Wink
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Centerilizarov.alexandra
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« Reply #15 on: November 08, 2010, 10:57:17 PM »

As I write before we were staying in Centre of Ilizarov almost 9 months.
First time was hard without husband and family. First month all time i was taking care of daughter and almost fall down to depression. But day of the day i knew more patients of our section and we even start to go out. Was autumn and is wonderful time in Russia. Trees like playing with colors: red, yellow, orange. When Raisa has not very much pain we walked in the park around clinic



 
First our long walk was to one very beautiful place. There are 3 lakes out of town. 10 minutes in taxi and you are in paradise  Grin So i called what place Smiley We loved come there in weekends, there are few restaurant and we loved eat meat which cook in fair, was very tasty  Tongue  In one month i already has much friends and all of them had fixator. I even feeled me like friky, because I has not any fixator  Grin  And my daughter was feeling self good of see that she such is not alone Smiley
In the Centre are 2 shops where patients can buy some things for bathroom, sweets and food (if wish something different of food of clinic). 1 shop is right in the clinic and for go to second shop you have to go out, 3 min. If have fixators in legs it take 5-7 min  Grin
Out of clinic live 2 dogs and if you feed them you will always have company to walk

They are not homeless, but prefer to be close to clinic and eat like a elephants  Grin These white one even was operated in veterinary clinic of Centre of Ilizarov, which located in park. To veterinary bring animals like bears, punters, tigers from all parts of Russia.
 
  Centre of Ilizarov have 24 sections of different traumatology (traumas of head, back, fingers, arms, deformation of arms, legs, arms..) There is 1200 beds and each year pass about 7-8 thousands patients. First general recommendation of doctors is patient must to walk, this way regenerate of bone grow and making hard more quick. The clinic is really very big and patients can walk all day. In the evenings patients usual go out for take fresh air. Also there is Museum of history external fixation, some things of Gavriil Abramovich Ilizarov, much pics of him with famous people and examples of fixators and even men-fixator (can see it in photo in down)
URL=http://www.subirimagenes.com/fotos-17022010185-5480175.html][/URL]

In the clinic 3 gyms where patients realize rehabilitation 2 times at the day. Each patient have own instructor of rehabilitation who working together with doctors. This moment is very important. Of what way patients rehabilitate knees without pain and more quick than if they would do it at home.
As i write before, Raisa didn't walk about 6 months, her knees didn't work and thank to professionalism of her instructor she start to walk in 2 months.

The first of that i was surprise is rooms. They are not looks like rooms of hospital. It is like small flat, have big bathroom and own kitchen. Is very comfortable. Furniture is like at home and clothes of bed is of different colors. Day of day this thing make you good mood Smiley When i closed door to our room i feel like we were staying at home. I even buy flowers each 2 weeks for my girl  Smiley There are refrigerator, microwave, table with chairs in the  kitchen, and furniture for clothes, bed, TV in the room. In what photo is our kitchen Smiley
URL=http://www.subirimagenes.com/fotos-01122009081-5480191.html][/URL]



 Also clinic have small internet cafe and cafe where selling salads, pizzas, tea and juices.
Usual patients bring much CD with movies and at the end of treatment usual don't see none because have not time for this Grin
About food. We with my daughter always was sharing her ration. Was impossible to eat all alone. One time in week nurses give menu to patients and they choose menu for next week. Is very comfortable, if you don't like some things always can ask something other. We always eat everything, there is cooking good, like at home. The food is balanced for help to bones to grow quicker.  
Also in Centre of Ilizarov making massage for relax muscles. Patients usual love it  Cheesy
Centre of Ilizarov working about 50 years with fixation external and there created all conditions for comfort of patients.



in this photo is centre of Centre of Ilizarov, here always celebrate any party.

in the last photo is party of New Year Smiley



If somebody have any questions ask me Smiley



 

 
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« Reply #16 on: November 13, 2010, 07:36:44 PM »

Hi,

what the doctor in Spain did to your girl is atrocious.  I feel like killing him, I hope he burns in hell for hurting your daughter.  If a doctor did that my little sister, I would do something to him.  I am happy you got fixed up.  I hope your daughter can live a full and happy life.   Smiley

I had a doctor in Lebanon mess me up, not as bad as those xrays, but still messed me up.  The main thing that haunts me is his arrogance, how even when he knew he was wrong, he was unable to apologize.  I hope he will burn in hell.

I hope you post so that we can know how your daughter is even months from now.  She deserves a good and full life.  Don't worry about your English, it is great.  I am an English teacher in Saudi Arabia.  Your English is great, I hope you post more.
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« Reply #17 on: November 14, 2010, 08:00:49 PM »

Hello Wink
Of cause i will continue here and tell. The last our news was that girl will need transplantation of sinews of both tibias. Is one of a lot of consequences after first operation in Spain.
 
I hope after tell our story here it will help to some people in the choose of the clinic. And hope some will not repeat our errors.
And also i don't recommitted search cheap offers in LL. Is one thing too serious and save money in LL today can stay all life with problems with healthy.
There much clinics who do it really good in the world and better wait 1-2 years more for can pay and make LL with guarantee than later stay without healthy, money and job.
Hope i will not scare people here i just wanted to inform.

cralg49 thx for your attention to us Wink
Really in the beginning i wanted to kill what doctor but now pass time and i have my head cold. I want only one thing is demonstrate to him what he is not professional, take off him from hospital and he keep his hands far of children  Undecided

Also I would like to remain here that I working for Centre of Ilizarov and if somebody have questions can ask me here or by email. Im connect in messenger each day too : centerilizarov@hotmail.com

Greeting from Tenerife Wink
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« Reply #18 on: December 16, 2010, 11:28:13 AM »

here is documental movie about treatment in Center Ilizarov, think will be interesting for some users here  Wink

<a href="http://www.youtube.com/watch?v=1Us0qLsZkE0" target="_blank">http://www.youtube.com/watch?v=1Us0qLsZkE0</a>
« Last Edit: December 16, 2010, 11:39:12 AM by Centerilizarov.alexandra » Logged
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« Reply #19 on: December 16, 2010, 10:09:37 PM »

Couldn't help but noticing the mention of "Spinal Chord treatment". Smiley Nah jk Tongue
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