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Author Topic: Tarnor - External Tibias - Dr. Xia - 2010 - Rising to the Challenge  (Read 68323 times)
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tarnor
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Hi from Beijing


« on: February 21, 2011, 01:26:23 AM »

Hi. I'm currently a patient in Beijing.  I had my surgery at the end of November 2010.  Have started lengthening on the 6th of December 2010.  At the moment I have gained 5 cm and carry on lengthening phase.  

A bit more about me.  
I'm over 30 years old and live in England.  I have a full time job (professional field) and also part - time jobs as an fitness instructor and a scuba diving instructor.  

I'm going to share my experience and thoughts about my battle to gain few more cm.
I'm also NOT going to write a standard diary like day 1, day 2 and so on, but will concentrate on useful tips and turning points/events, which helped me to go through the whole process.



« Last Edit: April 14, 2011, 09:12:15 AM by SysOp » Logged
ShortMan655
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« Reply #1 on: February 21, 2011, 03:02:11 AM »

Are both your tibiae's and femur's being lengthened or just one?  How was the pain immediately post op?
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baller
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« Reply #2 on: February 21, 2011, 03:50:51 AM »

Thanks for sharing your experiences. Did you get single cur or double cut? What is your goal and when do you expect to complete lengthening?
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tarnor
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Hi from Beijing


« Reply #3 on: February 21, 2011, 04:47:23 AM »

Let's start from the very beginning.

I decided to have the LL surgery done about a year ago.  Because of my very busy schedule back at home I had to have more time to organise time off and other things associated with my work.
I told my boss that I'm having a surgery done on my knee and the rehabilitation takes long time.
Luckily, I've go a great boss and he gave me time off, initially we were talking about 4 months, but later on I had to email him and ask for few more months.  He agreed - thank God - so my job is secured.

FIRST TIP - 4 months is not enough - Initially I thought 4 months will be ok and I planned being home around that time.  It was a mistake and I had to re-schedule everything for another 2 months.
ADVICE - consider at least 5. 5 - 6 months off.

Based on my research I decided that hospital in Beijing is a good clinic to have my tibias lengthened and I started emailing them.  Got reply very promptly and have to say that all my trip to China was organised smoothly and with no problems.
TIP - try to get an open return ticket, so u can change your flight back if needed for a small fee.

I had my surgery 3 days later.  Got a DOUBLE CUT WITH ROD IN.
They perform single, double and S cut here.
Still not sure why some patients get single cut and another double.
As far as I know, double cut speeds up treatment and recovery.
It's also plus to have a rod inserted during the first surgery.  I will try to get more information about different cuts the advantages and disadvantages of each so will post it here.

First few days after surgery was uncomfortable, but in my case not much painful.  To be honest my butt was more painful from laying on my back all the time than my broken legs.

TIP - before the surgery try to get all necessary stuff, because later it's much more difficult.

First 10 days is the worst - some patients described them thoroughly day by day, so I'm not going to repeat it.
For me it was uncomfortable, had problems with sleeping and the trip to the loo was not nice.
I used basic pain management (paracetamol or tramadol) and it worked good for me.

My aim is 8 cm, like I said before, I'm more than the half way now. 
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tarnor
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Hi from Beijing


« Reply #4 on: February 21, 2011, 03:43:11 PM »

I met great people here, currently there are patients from Italy, US, India and England.

TIP - try to socialise as much as it's practicable.  You don't want to be stuck on your own for 6 months.

Of course, you will get along with some patient better than with others, but the point is to keep together.
Like I mentioned above, I'm very lucky, because all of us here has created a great team and it's much easier and quicker to go through all the treatment.
We visit each other during the day, meet in the afternoon to play some games, watch movies all basically support each other.

Before the surgery, back at home, I used to be very active person, and my life was kind of hectic.  I went to the gym almost everyday, did scuba diving  over-weekends.  
Therefore, going to the surgery my big worry was how would I manage to stay inactive for such a long time.
But I found a great solution, which works perfectly for me.  With the help of Roone, who is our so called international officer I built my own little gym in my room ( I requested to have a private room before I came to China).
I bought dumbbells in local store, ordered mini gym equipment and aerobic stepper and of course a huge mirror, so I can follow my bodybuilding progress haha.  
Some of you might not believe, but I manage to have almost two hours gym session a day, working out on my upper body almost like I used to do at home.
I also use my gym equipment for stretching my legs and aerobic stepper to practice steps.
For me it works perfectly well, I keep my mind focused, body fit and in addition I'm still growing.
I might attache some photos of my mini -gym when I figure out how to do it

The truth is that the staff in the hospital is extremely friendly and helpful.  At least in my case, whatever I want it's done within hours -  can't complain, can I?
I'm getting tired right now, will write more updates soon.   Wink
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baller
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« Reply #5 on: February 21, 2011, 11:36:20 PM »

Thanks for the update. I will be following your diary closely. All the best.
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tarnor
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Hi from Beijing


« Reply #6 on: February 22, 2011, 12:15:54 AM »

Few more thoughts about organising my day.

The average routine is like that:
Get up around 8 am, but it depends how well I slept night before.
Go on line , check my emails, facebook, MMT forum and so on.
Have breakfast, take shower and do my 30 min walk plus 30 min stretching.
Around 11 am lunch is coming.
Around 12 I have one hour gym session - upper body.
Shower again.
Rest, reading books, studying spanish, visiting friends around.
Around 4pm another 30 min walk, 30 min stretching.
Dinner around 5. 30 pm
Around 7pm walking and stretching again.
8 pm meeting with friends, playing poker, watching movies or catching up with parents and friends from England.
Around 10/11 pm time to go to bed.

Of course meantime I do my turning - right now I do 4 turns a day.

TIP - keep truck of how many turns u did by writing it down- it's easy to get confused and forget how many u have done so far during the day.
So I write down a number and time of each turn ex: 1 - 8am, 2- 11am and so on, that way I know exactly how many turns I have done so far from the morning each day.

I drink at least 2 shakes of protein, it's good for your bones and also preserves your muscles.
So for all who don't want to loose much muscle tissue during the whole stay in the hospital it's a MUST.
I also have an extra shake after exercising in the gym. 
I use protein powder I brought with me from UK, which is a fast-released protein during the day and Casein protein ( slow - released) before going to bed, to keep my muscles nutrient all night.
You can also buy a protein powder in the hospital, which is a standard Whey protein. 
I use my stuff because my body got used to more advanced proteins. 

Those who want to stay fit need to watch diet here as well.
The food verity is good, but I try to choose less fatty dishes, so no cream soups, and other oily stuff.  Instead, I have chicken breast, fish, salmon salads.  For breakfast boiled eggs are good.
For me Maccdonalds, KFC and stuff like that is a big NO, although there is a possibility to order it.  Some patients use to do it regularly, yet they can forget about 6 packs haha.

Before I finish todays post I would like to stress that positive attitude is very important. 
When your mind is happy, your body is happy as well and the recovery goes smoothly and swiftly.
Each of us has to find something to do to makes you happy.
For me it is my gym and catching up with Spanish and other reading, for others is studying Chinese( very impressive haha) or even working via computer.
That way the day is going quickly and you also don't feel like you are completely wasting the time.
I know that the main reason why I'm here is to get taller, but it doesn't mean I cannot do other stuff and even develop new skills.
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tarnor
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Hi from Beijing


« Reply #7 on: February 22, 2011, 12:23:07 AM »

Thx Baller for your best wishes.
All the best to you as well :D
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simmcity
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« Reply #8 on: February 22, 2011, 01:02:28 AM »

How many pounds of whey protein did you bring with you? It seems like if your staying at the clinic for 5 months or so, you're gonna need a lot of it.  
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chlor
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« Reply #9 on: February 22, 2011, 01:51:15 AM »

Hey Tarnor,

Your gym routine is very impressive.   It's amazing that you can go thru something as traumatic to your body as LL and still work out.   

I have one question for you if you don't mind.   Dr.  Xia and his team claim that the Beijing Institute has a 99% historical success rate for all LL patients, and 98% of all patients are *very* satisfied with their results.   Since you must have seen quite a few patients in the later stages of their LL journey there, and probably a few former patients who have come back to get their rods removed, could you tell us if Dr.  Xia & co. 's claims are more or less true based on what you're seeing?  I mean, are the majority of the former patients satisfied with their results? Any negative feedbacks/failure cases you may be hearing/seeing?  Thanks. . .
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tarnor
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Hi from Beijing


« Reply #10 on: February 22, 2011, 01:52:05 AM »

Hi m8,
I brought 3 x1 kg cans of protein powder with me, and my friend sends me 2 cans every second month from uk.
On average 1 kg of powder lasts about 3 weeks in my case.
But recently I run out of my protein, because still waiting for my parcel and had to purchase the hospital Whey powder, which is cool as well.

I just realised that I didn't download images properly, I might be a fitness expert but definitely not a computer one.
Will need to find out how to attache images here, any ideas anyone Huh?Huh?Huh?
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tarnor
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Hi from Beijing


« Reply #11 on: February 22, 2011, 02:23:43 AM »

Hi Chlor  Cheesy

It's an excellent question.

I've been here for over 3 months and like you rightly said I saw patients who just finished their treatment and were leaving the hospital, patients at the end of the treatment, who will leave in a month or so and like me patients who has on going treatment.

Only based on what I saw, all patients who left the hospital during my stay were happy with their result.
None of them at this stage had any complications. I'm still in touch with 2 of them and 2 months after last surgery they are doing fine. One of them resumed work and is doing great, another one has slower progress, but keeping ok.

Patients, who are going to leave the hospital in a month are ok as well, happy with the lengthening result, some patients experience minor complications like knee bending or ballerina foot.
But all depends on how much you lengthen and how hard you work out during the lengthening stage to avoid it.
Some patients do not stick to doctors advice and do more turns to speed up the lengthening stage - not worth - because it causes lots of problems and a rehabilitation phase prolongs dramatically.

My advice would be to prepare your muscles before the surgery by stretching and stronger upper body is a plus as well, since u will have to lift your body using your arms only at the beginning.

During the lengthening phase walking and stretching is a big, big MUST.
If you want to avoid problems you can't just sit in bed turning screws.
Of course, some patients experience some pin pain, or muscle pain - it happened to me as well, so I had to take few days rest in bed, but otherwise there is no excuse for no standing, walking and stretching.

To summarise, based on what I've seen so far I didn't see any major complications, patients are happy with their result, and minor complications (knee bending, ballerina foot, pin hole infections) can be easily avoided if you stick to doctors advice.
I can also say that doctors here are very experienced and caring.
Hopefully it answers your question and doubts.
Take care.
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tarnor
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Hi from Beijing


« Reply #12 on: February 22, 2011, 02:49:53 AM »

HA, HA Grin

thx to LEGOLAS I know how to post my photos here so here you go:

http://www.flickr.com/photos/59796274@N03/5466591663/in/photostream/
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tarnor
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Hi from Beijing


« Reply #13 on: February 22, 2011, 07:25:14 AM »

There is another link, not sure the previous one worked.



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tarnor
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Hi from Beijing


« Reply #14 on: February 22, 2011, 08:17:36 AM »

Time to talk about my friends here and staff.

There are 10 foreign patients at the moment. We are spread between two wings of the hospital.
I'm staying in the wing where the operative room is, with 4 other foreign patients. The rest are located in the opposite wing.
Like I mentioned before, each of us spend more time with different people, I think it's a matter of personal preferences. However, all of us stay in touch and meet frequently.
I spend more time in my wing, especially with one american and italian patient.
The italian one is also my gym partner, I can't believe how muscular he became within last 5 weeks.
Well done!!!!!

The staff.
Lets start with Roone, who is our translator and the manager here.
She is the person, who will reply your emails, give you all details about your stay in the hospital.
She is also the one who takes care about us during the whole stay in China.
Roone is a charming and a kind person. She is also extremely caring about patients. You can email or text her anytime and she replies promptly.
Her english is very impressive as well.

Each patient has a maid - a person who will do all basic stuff for you, bring food, do washing and so on.
Nurses - very nice, don't speak much english, but all of us manage to understand them well.
Doctors - the main surgeon is extremely knowledgable and he is also the main operator here.
Otherwise, each patient has a second doctor who deals with everyday care and minor problems if any occur.

If you have any questions about the above topic or want more details, please feel free to ask.





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sam
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« Reply #15 on: February 22, 2011, 12:24:13 PM »

Hi tarnor .
WELL SAID that  when your mind is happy your body is happy as well .Keeping your spirit high is very very essentiel.
You're a good exemple to fallow,keeping yourself busy with something beneficial for you is realy great. Roll Eyes Roll Eyes Roll Eyes
For the number of turns I have colored my screws with different colors each face of the screw has a different color: red blue yellow and white ,so in the morning all the screws have the blue face the next turn they all become red and so on
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tarnor
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Hi from Beijing


« Reply #16 on: February 22, 2011, 01:45:59 PM »

Hi Sam
Thanks for your reply. I'm glad u agree with me Cheesy.
Great idea with colouring your screws. I noticed that everyone is coping in it's own way. The point is to stay focused and go ahead with your dreams.

I have a very strong personality and never give up, so I decided to get the best from my current situation, therefore I work out, study a foreign language, catching up with reading. Also talking to my friends in the hospital is a new challenge since all of us come from different countries and backgrounds.
So, even though I got broken legs I have to say and it's honest - I really enjoy being here and no regrets so far.

All the best and kind regards Smiley
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baller
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« Reply #17 on: February 23, 2011, 01:46:14 AM »

You said you're turning four turns per day. How many mm is that? When do you anticipate that you'll finish turning the 8cm at the current rate?

You said you think you'll need an extra 2 months. Is that to stay in Beijing longer for consolidation? Or do you think you could go home but just need those 2 months before returning to work?
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« Reply #18 on: February 23, 2011, 03:10:36 AM »


Tarnor- I would like to ask you why you chose the double cut, was the reason more because of time contraints? I didnt know they were still doing bilateral lengthening there but it seems they still are doing it. Smiley
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tarnor
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Hi from Beijing


« Reply #19 on: February 23, 2011, 08:04:16 AM »

hi Galaxystar,

Very good question,
Firstly, I didn't choose it, the doctors decided which cut is the best for me based on my x-ray.
Secondly, I still don't know all advantages and disadvantages of all cuts they perform here.

Currently, the patients I talked to have a single, double or S cut. Some of them have rod inserted during the first surgery and some during the last one, when frames are removed.

Like I promised some time ago I'm going to find out from my doctor what are the criteria they use while qualifying a patient for a particular cut.
As far as I know from my doctor, the option I got, which is a double cut with rod, creates two areas of new bone growth, which according to him speeds up the treatment and recovery/bone consolidation is supposed to be better.
I do the lengthening in the way to create more distortion in upper area of my tibia than in lower, since the upper part has a better blood supply and new bone growths quicker. Turning is slightly more complicated than when you got a single or S cut, but manageable. Cheesy

On the other hand, I saw a final picture of one patient, who had his frames off few weeks ago, and he got S cut.
The new bone growth is very good and he seems to be very pleased with his S cut. But he didn't do more than 6 cm.

Take care Cheesy




 
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