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Author Topic: Emanuel - Internal Femurs - Dr. Jamal - 2013 - It's time to go to war!  (Read 112040 times)
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emanuel
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« Reply #380 on: March 16, 2016, 07:19:08 PM »

any news?

Yes, there are many news.

I am not going tell all that happened now (it would be a loooong post!), just the current result in a few words:

It looks from the current xrays that the problem with the non-union in my left leg is almost solved. The bone is quite stable now in both legs. But I had to pay a price. In both legs I couldn't keep the original lengthening amount of ~7,5cm. Probably the result is that I have lengthened a little more than 6cm. But I'll get an exact measuring in the future.

I am finally off crutches now since a little more than a week. So for me in a way my recovery begins only now.

Because with a non-union you will always have to rely on crutches and you can never walk normally.

It's such a big difference when your bones are solid and connected ...
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I did Internal Femurs with Dr. Jamal in Kiev in 2013.

Starting height: 165,5cm (5'5") Lengthened: 7,5 cm.
Due to long-term complications with bone healing/non-union causing nail breakages I lost some of the gained height in both legs. Final lengthening: probably a little more than 6cm.
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« Reply #381 on: March 16, 2016, 10:19:19 PM »

Congratulation, Emanuel!! You get off the crutches
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« Reply #382 on: March 17, 2016, 04:26:25 AM »

Congratulations Emanuel, I am happy things are finally starting to look good for you.  It's been a long journey for you.  Thank you for keeping us future LLers posted. 
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Tall
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« Reply #383 on: March 17, 2016, 05:50:33 AM »

Yes, there are many news.

I am not going tell all that happened now (it would be a loooong post!), just the current result in a few words:

It looks from the current xrays that the problem with the non-union in my left leg is almost solved. The bone is quite stable now in both legs. But I had to pay a price. In both legs I couldn't keep the original lengthening amount of ~7,5cm. Probably the result is that I have lengthened a little more than 6cm. But I'll get an exact measuring in the future.

I am finally off crutches now since a little more than a week. So for me in a way my recovery begins only now.

Because with a non-union you will always have to rely on crutches and you can never walk normally.

It's such a big difference when your bones are solid and connected ...

Long 3 year journey man, congrats on almost being done! I wish you the best!

Tall

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emanuel
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« Reply #384 on: March 20, 2016, 08:58:49 PM »

Thanks growsoon, Truespartan and Tall!

I also want to add nex x-rays with a little background.

Last summer the nail in my left leg broke. It probably was a matter of time due to the non-union.

I had to get operated rather quickly because I could hardly move with the broken nail. The following big surgery was done:
- The broken nail was taken out
- Non-union was cleaned
- Bone Graft was done
- Slight shortening was done to get a better chance of healing by compression
- New nail was put in

Now this is how the bone looks 6 months after this surgery:
 


« Last Edit: March 20, 2016, 09:41:30 PM by emanuel » Logged

I did Internal Femurs with Dr. Jamal in Kiev in 2013.

Starting height: 165,5cm (5'5") Lengthened: 7,5 cm.
Due to long-term complications with bone healing/non-union causing nail breakages I lost some of the gained height in both legs. Final lengthening: probably a little more than 6cm.
emanuel
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« Reply #385 on: March 20, 2016, 09:11:07 PM »

Congratulations Emanuel, I am happy things are finally starting to look good for you.  It's been a long journey for you.  Thank you for keeping us future LLers posted. 

I'll for sure keeping posting from time to time. Also I will add videos of me walking and hopefully jogging and running when I improve.

Of course I am slightly disappointed about having lost some of the gained height. Especially as with ~171,5 it pushed me back to a height which I would consider short (especially in a country like Germany).
However, that's what happend, LL is always a gamble and you never know what happens.






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I did Internal Femurs with Dr. Jamal in Kiev in 2013.

Starting height: 165,5cm (5'5") Lengthened: 7,5 cm.
Due to long-term complications with bone healing/non-union causing nail breakages I lost some of the gained height in both legs. Final lengthening: probably a little more than 6cm.
Bigfaker
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« Reply #386 on: May 02, 2016, 05:54:55 AM »

I'm really happy for you, Emanuel

As a fellow 3-year/Non-Union/Possible-graftee patient, your recovery gives me something to look forward to.

And don't sweat losing a bit of your gain. It's much better to be a healthy, functional 171.5 than a shaky 173.

Yes, there are many news.

I am not going tell all that happened now (it would be a loooong post!)
That never stops some of us! LOL
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Prev. Height: 5'-5.25"/165.7cm (Morning)
External LON with Dr. Raj Sringari - Install: 12/17/13 * Lengthened: ~3"/7.6cm * Frame Removal 04/17/14
Diagnosed with Partial Non-Union: 02/09/16
Ankle Debridement Surgery: 02/22/16
Rev. Nailing/Bone Graft/Tenotomy - Loma Linda Medical Center: 05/12/16
emanuel
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« Reply #387 on: May 02, 2016, 06:42:37 PM »

I'm really happy for you, Emanuel

As a fellow 3-year/Non-Union/Possible-graftee patient, your recovery gives me something to look forward to.

And don't sweat losing a bit of your gain. It's much better to be a healthy, functional 171.5 than a shaky 173.
That never stops some of us! LOL


Hey bigfaker,

welcome back in my diary and in the forum!
I was happy to read sth. from you again after such a long time 2 weeks ago.

I agree that a functional 171,5 is better than a shaky 173, but somehow after losing some of the height I started to think about a 2nd LL again. Can't help myself, you know  Wink But right now it is not really an option with a time-consuming job, and having a family now and being broke anyway.

I think the bone graft will do wonders for you too. It's such a big difference when the bone is finally connected. But with a non-union ... forget about everything: proper walking or even more difficult stuff. You simply can't do much because your body doesn't allow. And there is always that danger to break the nail...

I hope your Bone Graft will be done by a specialist in this field. It has to be done right to work and is not such an easy procedure.

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I did Internal Femurs with Dr. Jamal in Kiev in 2013.

Starting height: 165,5cm (5'5") Lengthened: 7,5 cm.
Due to long-term complications with bone healing/non-union causing nail breakages I lost some of the gained height in both legs. Final lengthening: probably a little more than 6cm.
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« Reply #388 on: May 03, 2016, 08:37:49 AM »

Hi Emmanuel. Did you go back to Jamal for bone graft and new nail or someone in Europe?

My rod with Jamal also broke half way through lengthening process it was device flaw and device malfunctioned at about 10 days post second leg. First leg fine. So I lay in hospital as I type having gone through the most difficult surgery of my life. A new rod was inserted by another Dr in another country when Jamal nail broke.they tried cadaver bone but union was not achieved for the half of lengthening I had achieved about 3cm. I tried exogen and seemed to be working slowly Then finally lower screw broke in April which meant I needed graft anyway and new rod . But what about the 4cm gap I have with  other leg. Well I now have a precise 2 from knee. A new standard dynamic nail from top and bone graft from iliac. I now have two bone disections and two rods. One at the top where original Jamal nail was and new one in mid thigh area inserted from knee  for precise two. This is day five in hospital. I am so over it. Tired of all the pain and 2 years of crutches. Tired of not playing with my kid or going for walks with my wife. Hopefully now there will be union and growing the last 4cm.i will just say the way the rod of Jamal is designed it is very difficult for any other surgeon to remove. Designed this way on purpose. I hope this graft takes hold. 
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emanuel
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« Reply #389 on: May 03, 2016, 09:56:26 AM »

Hi Emmanuel. Did you go back to Jamal for bone graft and new nail or someone in Europe?

My rod with Jamal also broke half way through lengthening process it was device flaw and device malfunctioned at about 10 days post second leg. First leg fine. So I lay in hospital as I type having gone through the most difficult surgery of my life. A new rod was inserted by another Dr in another country when Jamal nail broke.they tried cadaver bone but union was not achieved for the half of lengthening I had achieved about 3cm. I tried exogen and seemed to be working slowly Then finally lower screw broke in April which meant I needed graft anyway and new rod . But what about the 4cm gap I have with  other leg. Well I now have a precise 2 from knee. A new standard dynamic nail from top and bone graft from iliac. I now have two bone disections and two rods. One at the top where original Jamal nail was and new one in mid thigh area inserted from knee  for precise two. This is day five in hospital. I am so over it. Tired of all the pain and 2 years of crutches. Tired of not playing with my kid or going for walks with my wife. Hopefully now there will be union and growing the last 4cm.i will just say the way the rod of Jamal is designed it is very difficult for any other surgeon to remove. Designed this way on purpose. I hope this graft takes hold. 


Hey fxaud,

very sorry to hear what happened to you. As you can imagine I can very much relate to it as we went through similar complications.

The Bone Graft + Nail exchange + shortening surgery was done in Malta (European Union), see also here: http://www.makemetaller.org/index.php/topic,7999.0.html
It was quite a big surgery and took 5 or 6 hours, if I remember the Drs. words right.

Good luck, the bone graft should work for you, it usually does...



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I did Internal Femurs with Dr. Jamal in Kiev in 2013.

Starting height: 165,5cm (5'5") Lengthened: 7,5 cm.
Due to long-term complications with bone healing/non-union causing nail breakages I lost some of the gained height in both legs. Final lengthening: probably a little more than 6cm.
fxaud
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« Reply #390 on: May 03, 2016, 10:09:55 AM »

Thanks a lot. The surgery I had to remove Jamal nail took six hours. Surgeon said  he won't touch the left leg Jamal rod because it was impossible to remove from right. Nothing was in line with international standards.

The current surgery which I had four days ago was also six hours, change rod at top, put precise 2 at bottom plus bone graft. This was a hard surgery.

Did your Malta surgeon have a tough time removing Jamal rod. Kiev refused to cooperate in helping my surgeon with instructions on how to remove the broken nail particular issue is the metal part that sticks out near hip. Did he have difficulty.
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emanuel
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« Reply #391 on: May 03, 2016, 01:12:41 PM »

Did your Malta surgeon have a tough time removing Jamal rod. Kiev refused to cooperate in helping my surgeon with instructions on how to remove the broken nail particular issue is the metal part that sticks out near hip. Did he have difficulty.

Well, he said that it was a very difficult operation and afterwards he was quite pleased with himself (rightly so!) that they managed it so well. But he had told me already before the surgery that it would be very difficult. It was just extremely complex to manage the nail exchange + bone graft without losing too much height...

You said Kiev didnt cooperate. Did Dr. Jamal want you to come to Kiev and fix the complication himself?
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I did Internal Femurs with Dr. Jamal in Kiev in 2013.

Starting height: 165,5cm (5'5") Lengthened: 7,5 cm.
Due to long-term complications with bone healing/non-union causing nail breakages I lost some of the gained height in both legs. Final lengthening: probably a little more than 6cm.
fxaud
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« Reply #392 on: May 03, 2016, 02:29:01 PM »

Hi Emanuel Sure he wanted me to come to Kiev. This rod has been designed to be only removed easily by the owner.

I was getting different messages from different drs. Dr Jamal said I don't have a delayed or non union. All is good to come and fix new nail. On the other side I had two different Western limb length specialist surgeons who worked with Mr paley saying I had a clear non union and needed graft.

Who do you plan to remove the other Bleskunov left in your other leg? I'd love to get it out but surgeons here won't touch it because of the trauma it will cause. As an example I saw my surgeon tonight. He said that this surgery was easy for him where he did a nail exchange plus precise 2 install plus bone graft vs the previous surgery of removing the broken Bleskunov and inserting new nail he did before.
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fxaud
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« Reply #393 on: May 03, 2016, 07:20:00 PM »

Hi Emanuel how can I pm you. We have a lot to talk about. It's says error when I press pm to you
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Bigfaker
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« Reply #394 on: May 04, 2016, 11:58:47 AM »

Hey bigfaker,

welcome back in my diary and in the forum!
I was happy to read sth. from you again after such a long time 2 weeks ago.

I agree that a functional 171,5 is better than a shaky 173, but somehow after losing some of the height I started to think about a 2nd LL again. Can't help myself, you know  Wink But right now it is not really an option with a time-consuming job, and having a family now and being broke anyway.

I think the bone graft will do wonders for you too. It's such a big difference when the bone is finally connected. But with a non-union ... forget about everything: proper walking or even more difficult stuff. You simply can't do much because your body doesn't allow. And there is always that danger to break the nail...

I hope your Bone Graft will be done by a specialist in this field. It has to be done right to work and is not such an easy procedure.

Thanks, Bro. It's always good to be in your diary and...the forum?...um, well, it's a lot quieter here than I had remembered it!

Yes, it seems like most everybody under 5'11" or so still contemplates/fantasizes a second round. But I totally understand both the family and financial restraints. A big part of why I went with a low-cost option was because if I waited to save for internals...or even China, I might have been WAY too old to do this (if I wasn't already)

I have a surgery scheduled for next week, but I haven't decided 100% on having the graft. Right now, I am leaning toward a revision nailing instead. My new doc says the reaming out of the bone will stimulate new bone growth. Plus it's just one procedure, instead of two. And yes, this ortho is a specialist in non-unions. The hospital/university is actually one of the most respected in California, if not the entire Western US.

You're not kidding about non-union limiting everything. I limp most of the time, but I can fake a proper gait if I concentrate on it.
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Prev. Height: 5'-5.25"/165.7cm (Morning)
External LON with Dr. Raj Sringari - Install: 12/17/13 * Lengthened: ~3"/7.6cm * Frame Removal 04/17/14
Diagnosed with Partial Non-Union: 02/09/16
Ankle Debridement Surgery: 02/22/16
Rev. Nailing/Bone Graft/Tenotomy - Loma Linda Medical Center: 05/12/16
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If you go through hell, don't stop, keep walking


« Reply #395 on: July 04, 2016, 12:58:34 AM »

HI EMANUEL. RGKEY HERE. Im glad you are doing better! as I told you a long time ago, one day this will be just a memory, we are almost there brother! best of luck! cheers!
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Original height. 163.5cms
Current height.  172.5cms
Operation on 6/4/13
emanuel
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« Reply #396 on: March 29, 2017, 02:15:24 PM »

Update time!

Here are last week's x-rays.
Looks like the bone is finally getting there (left femur, after the bone graft) or got there (right femur)...

Right femur:







Left femur:

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I did Internal Femurs with Dr. Jamal in Kiev in 2013.

Starting height: 165,5cm (5'5") Lengthened: 7,5 cm.
Due to long-term complications with bone healing/non-union causing nail breakages I lost some of the gained height in both legs. Final lengthening: probably a little more than 6cm.
emanuel
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« Reply #397 on: March 30, 2017, 09:33:04 PM »

HI EMANUEL. RGKEY HERE. Im glad you are doing better! as I told you a long time ago, one day this will be just a memory, we are almost there brother! best of luck! cheers!

Hey RGKey. I've just read the news in your diary and seen the xrays. I hope that you are getting this corrected already by a good doctor, best of luck to you!!

My orthopedist said after last weeks xrays that I can finally jump and do sports now without risk. Still am a little hesitant to go for the jumping/running thing after worrying about the bone  for years...

 
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I did Internal Femurs with Dr. Jamal in Kiev in 2013.

Starting height: 165,5cm (5'5") Lengthened: 7,5 cm.
Due to long-term complications with bone healing/non-union causing nail breakages I lost some of the gained height in both legs. Final lengthening: probably a little more than 6cm.
Joe2000
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« Reply #398 on: March 31, 2017, 07:58:09 PM »

try imgur.com
or just paste the links and we will copy them.
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Rgkey
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If you go through hell, don't stop, keep walking


« Reply #399 on: June 16, 2017, 09:38:01 PM »

Hey RGKey. I've just read the news in your diary and seen the xrays. I hope that you are getting this corrected already by a good doctor, best of luck to you!!

My orthopedist said after last weeks xrays that I can finally jump and do sports now without risk. Still am a little hesitant to go for the jumping/running thing after worrying about the bone  for years...

 

EXCELLENT NEW MY FRIEND!!! I WISH YOU LONG HAPPY LIFE!!
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Original height. 163.5cms
Current height.  172.5cms
Operation on 6/4/13
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