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Author Topic: Blackbear - External Tibia / Internal Femur - Doctor Withheld - 2013 - Part 2 Commence!  (Read 38962 times)
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Rgkey
LL Patient
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If you go through hell, don't stop, keep walking


« Reply #180 on: July 04, 2016, 01:13:57 AM »

hey man, you are a warrior no question a about it. I hope all gets better for you brother.
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Original height. 163.5cms
Current height.  172.5cms
Operation on 6/4/13
ibuse
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« Reply #181 on: December 03, 2016, 09:16:11 PM »

You may not be alone with those with OI in undergoing this surgery.  I may have it, I'm currently doing tests to verify.  But I did get a terrible bone DXA score on my spine and and part of my hip.  The rest of my body appears to be functioning great, which is kind of funny.  I'm thinking about having cement injections done on my spine to see if it will fortify the bone and restore some height.  I haven't fractured a bone since childhood, as it got better with puberty like yourself.  I can't email you, but could you give me a list of doctor(s) who do this surgery for those with OI? I want to lengthen my tibias, but some doctors are scared about doing it for those with bone diseases.  The studies I've read suggest that there is very little difference in bone regeneration for a normal patient vs.  those with OI, but I'd like to talk to a Dr.  who has gone through this scenario before.

Thanks!

My email is ibuse123@gmail. com
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