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Author Topic: Rtaller - Internal Femurs - Dr. Paley - 2013 - Doing Femurs w/ PRECICE 2  (Read 78450 times)
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rtaller
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« on: December 24, 2013, 11:42:25 PM »

I'm a patient of Dr.  Paley's doing internal femurs, post-op day 5 already. I'd like to start a diary of my own.  
I have a master's degree in Psychology so I think I can bring a unique perspective to my LL journey.  I need this journal to act as an outlet of a truthful account of my journey.  Let me know when I can start
posting my story.  Lots of love,

R (31 years old)
start height: 168cm
end height: omg. . .  just taking it one day at a time right now !
Logged

Started Lengthening 12/19/2013 --- 168cm (5'6in)
t/f ratio: 357mm/457mm= 0.   78

Finished Lengthening 2.22.2014 --- 174cm (5'8.5in)
t/f ratio: 357mm/520mm = 0.   69

Up and Walking ?.?.2014
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« Reply #1 on: December 25, 2013, 12:34:53 AM »

Here is your new diary Rtaller. It will be great to have more perspectives on the PRECICE 2 and on Dr. Paley. He has a lot of patients, but very few of them have written diaries here. Congrats on starting your journey. Smiley
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Agrios
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« Reply #2 on: December 25, 2013, 02:50:20 AM »

Congrats on starting your LL journey Smiley

I'll be undergoing surgery at the end of February 2014.  Keep us updated!
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February 2014 - Femur precice 2 with Dr. Paley
Lengthened 8cm
Healed 100%

August 2015 - Tibia precice 2 with Dr. Paley
upinthesky
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« Reply #3 on: December 25, 2013, 03:09:08 AM »

Another Paley patient - great! Best of luck  Smiley
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Starting Height: 165 cm
Final Height: 172 cm

Date of Surgery: January 6th, 2014
Started Lengthening: January 11th, 2014
Started Walking Again: March 21st, 2014
From Surgery to Walking: 75 days

Lengthened 7 cm with Dr.Muharrem Inan in Istanbul, Turkey with the Fitbone Internal Method.
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« Reply #4 on: December 25, 2013, 04:34:47 AM »

Keep us posted. I might be joining dr. Paley in summer. Let us know about accommodation plan and breakdown of cost etc. I will be following closely our LL journey. Good luck!
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Starting Height: 160
Lengthening Goal- 7 to 8
rtaller
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« Reply #5 on: December 27, 2013, 05:53:29 PM »

[1] Background Info, Costs, and a Brief Introduction of Me

I came in for a consultation at the Paley Institute (St.  Mary's Medical Center)
in West Palm Beach, Florida in late August 2013.  I waited around for the release
of the Precice 2 (which lengthens up to to 8cm).  Luckily I did not have to wait
that long because he released P2 in the middle of November.  I was one of the
first in line to try the new technology that would allow 75lbs weight bearing/ leg.

Since P2 is still very new, I think I'm one of a handful (I'm guessing 20ish) people
that have the P2 in them right now.  Yup, I'm SPECIAL  Grin

Some people have already asked, so I guess I'll breeze over the numbers, but
P2 itself costs $80K, but MMT members get a $5K discount.  However, the releasing of
other muscles such as the IT band/hamstrings (which will help ensure you reach
your goal if all goes well and you kill yourself with the stretching exercises) is another
$5K.  That is optional, but highly recommended.  Preferred housing here for Dr.  Paley's
patients is at the Hilton Homewood Suites.  That will run you around $80 a night for
about 3 months.  You do math.  All in all,

I would have $100K set aside for this surgery. It's not cheap, but do you really
want to take a chance on safety?

So onto the part about me.  I am a 31 yr old American guy of Asian descent.  I grew up
in Los Angeles, rebelling against my parents (still am. .  LOL), fairly optimistic in life,
though I have been through some pretty challenging things in my life so far.  Ever
since I was a baby, I thought I was pretty much awesome at everything I did.  
I picked things up really quickly and generally have a good sense of self worth.  I'm a
fighter, but of course also have my lazy days at the gym.  Not only do I value my body,
but also my mind: I not only have a master's degree in psychology but I meditate daily for
about 30 minutes.  In my free time, I like listening to relaxing music/pop/dance music,
reading self-help/psychology books, exercising, pretty much anything that is good for me.  

I started this journal for myself and for everyone out there that wants a true glimpse into
the life of an LL patient.  I know there are several diaries out there already, but hopefully
I will be the first to shed light on the P2 and bring a unique psychological perspective to
the whole process.  

Sometimes I will read the responses and respond to all of them, and I'm sure at other
times I will be WAY too tired to.
*I'm tired as I write this long entry*

I had surgery done on 12/19/2013, so I'm only post-op day 8
Please bear with me.  I hope that this diary will serve to better educate and illuminate those
who may be considering having LL done.  

Much love, XOXO

Rtaller
Logged

Started Lengthening 12/19/2013 --- 168cm (5'6in)
t/f ratio: 357mm/457mm= 0.   78

Finished Lengthening 2.22.2014 --- 174cm (5'8.5in)
t/f ratio: 357mm/520mm = 0.   69

Up and Walking ?.?.2014
usnom
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« Reply #6 on: December 27, 2013, 06:31:10 PM »

So did you start distracting yet? If so is it painful or painless? Also what pain killers are you on?
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rtaller
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« Reply #7 on: December 27, 2013, 09:30:58 PM »

usnom:

you asked the million dollar question: is it painful?

I started distracting the day after surgery (post-op day 1)
don't ask me why? Dr.  Paley designs different plans for each individual.
I know of at least two other people that waited one week before they
started distracting. 

this is the analogy one of the doctors here uses: "you're breaking the
two biggest bones in your body.  it's going to feel like you got hit by
a  car".  to answer your question about pain, he responds that everyone
responds to the pain differently. 

this is definitely true.  I have a few friends here at the homewood suites
that barely eat painkillers except for before bed and before PT (the two
most painful times).  I, however, have to eat them throughout the day
and if I don't, the pain IS unbearable


I cannot describe the pain to someone who has never gone through such
pain.  It's not like getting kicked in the nuts or any other sort of sharp pain.
Those can be a 9-10 on a pain scale.  This sort of pain is there 24/7 and
can fluctuate anywhere between a 2. 5 - 7.  When it gets anywhere above
a 5 or 6, I started getting really worn out and dejected and I want to give
up.  It's hard to imagine pain that is constantly there unless you've experienced
chronic pain, but having a short burst of 9-10 pain is so much easier than
having to sleep and wake up feeling something around 3-5 on average of
controlled pain (controlled by meds). 

Again, I must emphasize that everyone is different.  I have friends here that
don't eat pain meds during the day, but they didn't start lengthening post-op
day 1 like I did.  I am at post-op day 8 now and so I've lengthened . 675cm so
far (going to be . 775cm by the end of today).  We're supposed to lengthen
4 times a day @ . 25mm each day, so that we get 1mm or 0. 1cm a day, but
one day, it was all too unbearable, so I didn't get my fourth turn in. 

I will be using expletives and more descriptive ways to describe the pain in
some of the coming entries, but just wanted to address that even with the
pain killers, for me, it's no F*cKing walk in the park.  

An analogy I like to make is, unless we give birth without the use of an epidural,
we will never know the pain our mothers went through to have us.  In the same
way, if you never go through LL surgery, you're not likely to be able to wrap
your head around what the pain of having to broken legs+ pulling them apart
immediately after surgery+ doing physical therapy on them starting a few days
later is like.  You've basically given your body this intense trauma.  Your body
wants to just heal, but you've got to start lengthening and doing stretching
exercises in the midst of your bruised and fatigued condition. 

THAT"S a little bit of what the pain is like. . . 
Logged

Started Lengthening 12/19/2013 --- 168cm (5'6in)
t/f ratio: 357mm/457mm= 0.   78

Finished Lengthening 2.22.2014 --- 174cm (5'8.5in)
t/f ratio: 357mm/520mm = 0.   69

Up and Walking ?.?.2014
rtaller
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« Reply #8 on: December 27, 2013, 09:33:10 PM »

usnom:

I'm on Oxycodone 5mg (it's recommended I take 1 tablet every 6 hours)
but that's totally not cutting it, so I'm taking closer to 1 tablet every 3 hours

Also, we take Valium 5mg before physical therapy.  Some people take it
before sleeping too.  So far, I'm still figuring out what works best for me
so I haven't been taking it at night. 
Logged

Started Lengthening 12/19/2013 --- 168cm (5'6in)
t/f ratio: 357mm/457mm= 0.   78

Finished Lengthening 2.22.2014 --- 174cm (5'8.5in)
t/f ratio: 357mm/520mm = 0.   69

Up and Walking ?.?.2014
usnom
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« Reply #9 on: December 27, 2013, 09:53:58 PM »

Thank you for that detailed answer!

One more question, are you in a wheelchair most of the time? What type of weight bearing do you do if you if your under 150lbs?

I am 160lbs does that make me wheel chair bound for the 8cm?

Do you drive back and fourth or have a shuttle to go to PT and xrays?

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« Reply #10 on: December 27, 2013, 10:58:00 PM »

usnom:

you .... me, it's no F*cKing walk in the park.  

. . . 

i am going to enjoy your diary. try to post everyday. when you write as you go along you write what you really feel at that moment, later there is always a filter and the words come out different in my opinion. thx
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« Reply #11 on: December 27, 2013, 11:16:18 PM »

RTaller,

You're off to a great start! We'll be on the same path soon. Please try to rest sufficiently before posting, but don't keep us wondering either, we're all eager to walk along with you on this journey.

Apo used Percocet for his pain. Do you also plan to use it in the future? Would Melatonin perhaps help for sleep? It's a natural hormone sold OTC.

Maybe it's too early to ask this.. But did you ever think "What the f*ck did I do to myself?" after waking up from surgery? Hehe.. Only two more questions, please bear with me: Do you sleep on your back, sideways, or tummy down? Is it easy to take a shower?

Cheers,
up
Logged

Starting Height: 165 cm
Final Height: 172 cm

Date of Surgery: January 6th, 2014
Started Lengthening: January 11th, 2014
Started Walking Again: March 21st, 2014
From Surgery to Walking: 75 days

Lengthened 7 cm with Dr.Muharrem Inan in Istanbul, Turkey with the Fitbone Internal Method.
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« Reply #12 on: December 28, 2013, 01:07:21 AM »

Apo used Percocet for his pain. Do you also plan to use it in the future? Would Melatonin perhaps help for sleep? It's a natural hormone sold OTC.

Rtaller is using Oxycodone, which is the painkilling ingredient in Percocet. Percocet also has acetaminophen in it, which didn't really add anything for me. My local doctor prescribed Percocet for me once the Tramadol was no longer strong enough to numb the pain.

I had the same experience with Percocet that Rtaller is having with the pure Oxycodone, namely that it says it lasts six hours, but never lasted much more than three hours for me. When you have chronic pain during lengthening, that's a pretty important difference. I was on eight 10 mg Percocet a day at my worst, and I got addicted to it for a few months.

Apotheosis
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My personal apotheosis to the very best me I can be. Starting height: 171 cm. 9.5+ cm added to femurs. 10.5+ cm added to tibias. Final Height: 189.5 cm +/-

My femur diary: http://www.makemetaller.org/index.php/topic,3530.0.html
My tibia diary: http://www.makemetaller.org/index.php/topic,4202.0.h
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« Reply #13 on: December 28, 2013, 01:54:11 AM »

I'm a patient of Dr.  Paley's doing internal femurs, post-op day 5 already. I'd like to start a diary of my own.  
I have a master's degree in Psychology so I think I can bring a unique perspective to my LL journey.  I need this journal to act as an outlet of a truthful account of my journey.  Let me know when I can start
posting my story.  Lots of love,

R (31 years old)
start height: 168cm
end height: omg. . .  just taking it one day at a time right now !

Also tell me just the hours after waking up from surgery - how did that feel ? were you nauseated, in pain etc ....? we are bombarding you with questions....lol
 
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rtaller
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« Reply #14 on: December 28, 2013, 02:08:58 AM »

Quote from: usnom link=topic=6993. msg91090#msg91090 date=1388181238
Thank you for that detailed answer!

One more question, are you in a wheelchair most of the time? What type of weight bearing do you do if you if your under 150lbs?

I am 160lbs does that make me wheel chair bound for the 8cm?

Do you drive back and fourth or have a shuttle to go to PT and xrays?




I'm 135 lbs, which means I'm full weight bearing with a walker. What this means is that I can put all my weight on my walker, using my arms (think about doing a dip at the gym).  Then, while your body weight is suspended with your arms, you move your legs forward, shift your body weight down on those two feet, pick up your walker, move it forward, put all your body weight on the walker again, move your legs forward, etc. . .  I was able to take a few steps post-op day 2, but PLEASE PLEASE don't misunderstand that to mean anything other than I was only able to pick myself up and take a few steps.  I would be out of breath, wanting to faint and then have to sit and lie back down and sleep for 30 minutes or so from the exhaustion of having my bones broken, being on a ton of narcotics, having an epidural in me, etc. .

You are 160lbs which means you won't be able to put all your weight on the floor.  I don't really know exactly how that works, perhaps someone else can shed some light on that!

Third question, ARE YOU KIDDING ME? DRIVING?!!! you won't be able to drive for several weeks, probably a month after surgery.  Staying at the Hilton Homewood Suites is great.  There is a shuttle bus that you can get to drive you to and from PT every day.
Logged

Started Lengthening 12/19/2013 --- 168cm (5'6in)
t/f ratio: 357mm/457mm= 0.   78

Finished Lengthening 2.22.2014 --- 174cm (5'8.5in)
t/f ratio: 357mm/520mm = 0.   69

Up and Walking ?.?.2014
rtaller
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Spread Your Love Everywhere You Go


« Reply #15 on: December 28, 2013, 02:11:24 AM »

Quote from: Apotheosis link=topic=6993. msg91095#msg91095 date=1388192841
Rtaller is using Oxycodone, which is the painkilling ingredient in Percocet.  Percocet also has acetaminophen in it, which didn't really add anything for me.  My local doctor prescribed Percocet for me once the Tramadol was no longer strong enough to numb the pain.

I had the same experience with Percocet that Rtaller is having with the pure Oxycodone, namely that it says it lasts six hours, but never lasted much more than three hours for me.  When you have chronic pain during lengthening, that's a pretty important difference.  I was on eight 10 mg Percocet a day at my worst, and I got addicted to it for a few months.

Apotheosis


thanks for the response Apotheosis.  You are a legend on here!!! I'm currently taking about 8-10 x 5mg Oxycodone.  I can't do PT and can't really function at all at home without the painkillers, but I'm only 135lbs.
Logged

Started Lengthening 12/19/2013 --- 168cm (5'6in)
t/f ratio: 357mm/457mm= 0.   78

Finished Lengthening 2.22.2014 --- 174cm (5'8.5in)
t/f ratio: 357mm/520mm = 0.   69

Up and Walking ?.?.2014
Agrios
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« Reply #16 on: December 28, 2013, 02:13:21 AM »

I had my consultation a couple weeks ago and Dr. Paley told me the IT/hamstring release wasn't necessary for me. However I would love to achieve my three inch goal. Did he preform the release on you and would you recommend it?

I also have a question about the pricing if you don't mind me asking. Is it 75k (cost of surgery and PT) for normal patients and 70k for MMT members?

Thanks and good luck!  Smiley
Logged

February 2014 - Femur precice 2 with Dr. Paley
Lengthened 8cm
Healed 100%

August 2015 - Tibia precice 2 with Dr. Paley
rtaller
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Spread Your Love Everywhere You Go


« Reply #17 on: December 28, 2013, 02:17:14 AM »

Also tell me just the hours after waking up from surgery - how did that feel ? were you nauseated, in pain etc ....? we are bombarding you with questions....lol
 


The immediate hours and days post surgery is not that bad since you will most likely be on an epidural if you do it with Dr. Paley. An epidural numbs the lower half of your body. Definitely really nauseous though. I vomited twice. The most pain I've had so far is from the aching that follows in the waking/sleeping hours post-op after the epidural comes out and you try to not rely on the painkillers. And one of my muscles/tendons felt like it was being burned/ripped apart during PT today.
Logged

Started Lengthening 12/19/2013 --- 168cm (5'6in)
t/f ratio: 357mm/457mm= 0.   78

Finished Lengthening 2.22.2014 --- 174cm (5'8.5in)
t/f ratio: 357mm/520mm = 0.   69

Up and Walking ?.?.2014
rtaller
LL Patient
MMT Member
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Credibility 118
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Gender: Male
Posts: 127


Spread Your Love Everywhere You Go


« Reply #18 on: December 28, 2013, 02:19:33 AM »

I had my consultation a couple weeks ago and Dr. Paley told me the IT/hamstring release wasn't necessary for me. However I would love to achieve my three inch goal. Did he preform the release on you and would you recommend it?

I also have a question about the pricing if you don't mind me asking. Is it 75k (cost of surgery and PT) for normal patients and 70k for MMT members?

Thanks and good luck!  Smiley



When I had my consultation, he said I only needed to release my hamstrings, but when I got there, he said I needed to do both hamstrings and IT band. He didn't charge me more for it. His pricing should be the same for everyone. 70K for MMT members (5K discount). but you need to add in the extra 5K for release hamstrings/IT band
Logged

Started Lengthening 12/19/2013 --- 168cm (5'6in)
t/f ratio: 357mm/457mm= 0.   78

Finished Lengthening 2.22.2014 --- 174cm (5'8.5in)
t/f ratio: 357mm/520mm = 0.   69

Up and Walking ?.?.2014
rtaller
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Credibility 118
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Gender: Male
Posts: 127


Spread Your Love Everywhere You Go


« Reply #19 on: December 28, 2013, 02:28:50 AM »

RTaller,

You're off to a great start! We'll be on the same path soon. Please try to rest sufficiently before posting, but don't keep us wondering either, we're all eager to walk along with you on this journey.

Apo used Percocet for his pain. Do you also plan to use it in the future? Would Melatonin perhaps help for sleep? It's a natural hormone sold OTC.

Maybe it's too early to ask this.. But did you ever think "What the f*ck did I do to myself?" after waking up from surgery? Hehe.. Only two more questions, please bear with me: Do you sleep on your back, sideways, or tummy down? Is it easy to take a shower?

Cheers,
up


It's more like a breakdown. I've seen a happy hospital room start to resemble HELL... seriously...  I mean, the nurses at St. Mary's are top notch and I enjoyed my stay there so much. But, being on all those drugs and going through that sort of trauma. Imagine being hit by a car and having both your legs broken. THAT"S REALITY. I've had a couple break downs so far and I have a my partner with whom I have a very loving relationship who is by my side through it all. I seriously cannot imagine someone going through this all alone. I mean, I'm a real trooper, was a runner in high school, push myself when it comes to most sports, but this is NOTHING compared to any sort of pain you've ever been through. Oh, right, I've also had a number of cosmetic surgeries, including liposuction. No other cosmetic procedures compare at all to this one.

I haven't found the best sleeping solution yet, but I find I sleep better in the wheelchair than in bed. Being completely flat is the most painful thing actually, so I have always woken up after a few hours when my painkillers wear out when trying to sleep in bed.

Taking a shower is very difficult, but I have my partner to help me with that. We'll call him My LOVE from now, my partner that is.
Logged

Started Lengthening 12/19/2013 --- 168cm (5'6in)
t/f ratio: 357mm/457mm= 0.   78

Finished Lengthening 2.22.2014 --- 174cm (5'8.5in)
t/f ratio: 357mm/520mm = 0.   69

Up and Walking ?.?.2014
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