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Author Topic: external tibial lengthening in volgograd with dr barinov  (Read 30176 times)
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russianpatient
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« Reply #20 on: July 03, 2015, 01:12:35 PM »

day17
same old same old routine
tried turning more today
2.30 weird pain. unturned. felt less painful after that. ew. big mistake to turn excessively...

yessss sleep
Logged

the end of the diary. not own choice and own choice at the same time.
ready to move on. legs are healthy and getting better.

general questions about this experience:
are there good aspects: yes
are there problems: yes
could there be improvements:yes
russianpatient
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« Reply #21 on: July 03, 2015, 01:14:00 PM »

day18
all ok
same old
walked every even hour stretch after that until other walk
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the end of the diary. not own choice and own choice at the same time.
ready to move on. legs are healthy and getting better.

general questions about this experience:
are there good aspects: yes
are there problems: yes
could there be improvements:yes
russianpatient
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« Reply #22 on: July 03, 2015, 01:15:29 PM »

day19
6.00 wake up. dehydrated. annoyed. legs feel exhausted.
7.30 nurse kirill comes in check temp my is 36 deg
galina comes for plates
12 x-ray. one tibia little misaligned
2.30 walk
bathroom (nr 2)
you use a urine jug for urination in the room which gets cleaned once a day
4.00 sleep.... two and half hours

same old
i turn even though i donīt mention it
Logged

the end of the diary. not own choice and own choice at the same time.
ready to move on. legs are healthy and getting better.

general questions about this experience:
are there good aspects: yes
are there problems: yes
could there be improvements:yes
russianpatient
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« Reply #23 on: July 03, 2015, 01:17:17 PM »

day20
6.30 wakeup. computer usage. physio.feel sickenedly tired.
7.30 left knee tighter than right.
11 bandage
21 sleep med injection.
sleep
Logged

the end of the diary. not own choice and own choice at the same time.
ready to move on. legs are healthy and getting better.

general questions about this experience:
are there good aspects: yes
are there problems: yes
could there be improvements:yes
Joe2000
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« Reply #24 on: July 03, 2015, 05:40:19 PM »

looks like the guy is spaming and doing advertising for Dr Barinov. Recently I notice some "russian patients" saying how great Volograd is ...
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ilizarovgirl
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Sky's the limit so I am reaching for the stars.


« Reply #25 on: July 03, 2015, 06:08:55 PM »

looks like the guy is spaming and doing advertising for Dr Barinov. Recently I notice some "russian patients" saying how great Volograd is ...

hmm, definitely the way he describes his 'day after day' is weird and quite fake.
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start height: 151cm(4'11.5")
03/07/2009-30/03/2010 Ilizarov frames on tibias,+10cm

current height: 161cm(5'3.5")
31/03/2015-26/06/2015 Ilizarov on the right foot, club foot correction

desired height: 171cm(5'7.5")
russianpatient
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« Reply #26 on: July 04, 2015, 01:37:54 PM »

day21
13th day lengthening
1.30 wake up. feeling drowsy. right knee ligament feels better. almost no soreness at all.
20 doc takes med orders..
21 still waiting...no meds tonight...hmm. confused and annoyed

same...

day22
14th day of lengthening
normal level tiredness.
inner left ligament tight and sore

6.30 wakeup
7.30 physio etc all day
18 right knee ligament less sore
Logged

the end of the diary. not own choice and own choice at the same time.
ready to move on. legs are healthy and getting better.

general questions about this experience:
are there good aspects: yes
are there problems: yes
could there be improvements:yes
russianpatient
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« Reply #27 on: July 04, 2015, 01:41:25 PM »

day23
15th day of lengthening
6.00 woke up. slept badly.
legs are less swollen. dont feel swollen stiff.

day24
16th day of lengthening
problem update: left knee very tight on right side. prevents extension fully. not turning left leg today.
questions: is  left leg longer? later realized by x-ray it is not.
nurses did not give any injections yesterday...
probably nobody told me that regular injections only come for 1-2weeks.




Logged

the end of the diary. not own choice and own choice at the same time.
ready to move on. legs are healthy and getting better.

general questions about this experience:
are there good aspects: yes
are there problems: yes
could there be improvements:yes
russianpatient
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« Reply #28 on: July 04, 2015, 01:43:10 PM »

day25
17th day of lengthening!
left knee tightness little better
left knee tightness even little better with stretching
1.30 wakeup
sleep
4.30 wakeup
sleep
8.30 wakeup
9 stretching
9.30stretching
10stretching
10.30 stretching
11stretching
11.30stretching
12stretching
12.30stretching
13stretching
13.30stretching
14stretching
18.30 able to extend left knee 99% straightness. still stiff and sore though
19.30 1st attempt sleep

day26
left knee still tight
walking is totally ok.
only problem is to slowly stand up and wait until left knee normalizes from tightness
no sleep
Logged

the end of the diary. not own choice and own choice at the same time.
ready to move on. legs are healthy and getting better.

general questions about this experience:
are there good aspects: yes
are there problems: yes
could there be improvements:yes
russianpatient
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« Reply #29 on: July 04, 2015, 01:44:35 PM »

day27
left knee tight like yesterday
19th day of turning
16.00 did 1000 steps. 40 minutes
19.00 did 1000 steps 30 min

day28
slept 3,5 hours...
more training today

iīm walking even though i dont mention it.
the more the better.
docs want 8 hours.
realistically more like couple of hours.
Logged

the end of the diary. not own choice and own choice at the same time.
ready to move on. legs are healthy and getting better.

general questions about this experience:
are there good aspects: yes
are there problems: yes
could there be improvements:yes
russianpatient
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« Reply #30 on: July 04, 2015, 01:45:38 PM »

day29
slept from 2.30 ish to 5.30. well better than nothing.
i can feel the broken tibia in both legs
left knee arthritisy like yesterday. maybe little better.
21.00 nurse gives sleepmed/ supracin...or something

day30
same old
knee less tight now
legs have become less swollen the latest 5 days.
able to extend legs straight
got moved to clinic.
Logged

the end of the diary. not own choice and own choice at the same time.
ready to move on. legs are healthy and getting better.

general questions about this experience:
are there good aspects: yes
are there problems: yes
could there be improvements:yes
russianpatient
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« Reply #31 on: July 04, 2015, 01:46:56 PM »

clinic building


clinic hallway
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the end of the diary. not own choice and own choice at the same time.
ready to move on. legs are healthy and getting better.

general questions about this experience:
are there good aspects: yes
are there problems: yes
could there be improvements:yes
russianpatient
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« Reply #32 on: July 04, 2015, 01:55:27 PM »

physioroom
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the end of the diary. not own choice and own choice at the same time.
ready to move on. legs are healthy and getting better.

general questions about this experience:
are there good aspects: yes
are there problems: yes
could there be improvements:yes
russianpatient
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« Reply #33 on: July 05, 2015, 04:17:31 AM »

day31
slept through the whole night! woke up once 1.30 though.
tibia fracture hurts in left leg. not in right

day32
tibia fracture hurts in left leg. not in right. pain at 10 -15%
slept until 7ish. restlessly. pain at times.

day33
same






Logged

the end of the diary. not own choice and own choice at the same time.
ready to move on. legs are healthy and getting better.

general questions about this experience:
are there good aspects: yes
are there problems: yes
could there be improvements:yes
russianpatient
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« Reply #34 on: July 05, 2015, 04:19:23 AM »

day34
doctor replaced the short rods for the third time.....
warning=
they overtightened and lengthened so that it hurt to walk afterwards.
had to unturn multiple turns on all screws on the right leg afterwards.
that happened after i told them repeatedly beforehand to not overturn.
i could feel my bones moving as they were doing it.

just give me the planned lenghts the first time...

other:
left tibia pulsates and hurts at 10%
right inner upper pin hurts like skin stretched too far. ...at 15%
left leg can extend to 99% feels tight
right leg can extend 100% feels tightish

day35
same
pin-skin pain

day36
same
pin pain
Logged

the end of the diary. not own choice and own choice at the same time.
ready to move on. legs are healthy and getting better.

general questions about this experience:
are there good aspects: yes
are there problems: yes
could there be improvements:yes
russianpatient
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« Reply #35 on: July 05, 2015, 04:21:40 AM »

day 37
same
pin pain

day38
same

day39
same
realized that knee does not become straight although it locks and feels the same at max extension compared to pre surgery. who looks at how straight their legs are normally? were they ever straight?...yes they were
docs diagnose it as knee contracture.
inner ligament soreness now in right knee.

day40
swollen legs i see as problem now. happened also yesterday. pain type pressure, warmth, discomfort, prickling. calves get really tight and hard. filled with fluid.
overall i feel exhausted. discomfort and tiredness.weird. like a minimal cramp but not really cramp.
Logged

the end of the diary. not own choice and own choice at the same time.
ready to move on. legs are healthy and getting better.

general questions about this experience:
are there good aspects: yes
are there problems: yes
could there be improvements:yes
russianpatient
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« Reply #36 on: July 05, 2015, 08:17:51 PM »

day41
same old no problems

day42
new bandages
saw wounds
outer right pin stretched wound 1cm ish purple area.
same with outer left pin.
no other areas stretched.

day43
tight
same old
idea=double socks on feet for swelling. hmm lets see about that.
realization uncomfortable with the socks on.
swelling edema is normal for 4,2months according to studies. average. can be longer.

day44
no turning today
because
no sleep for two nights
testing testing...no turning=sleep?

day45
test failed. no sleep. couple of nights in a row
bad mood....
problem:swollen legs, disturbs the degrees of movement.
elevation produces weird pain...
need to get the swelling down to show doc that my ankle bendability is ok

13.00 got myself some coffee.
14.30 tired
17 coffee made head feel normal. body still major exhaustion.
17.30 walk.
18 walking messed with my already exhausted exhaustion. coffee doesnt help.
deep breathing for 5 minutes afterwards helped
18.30
in left leg something aches, kindof in skin, or tibia, no...the whole calfmuscle aches. super stiff too.
wow. keeping normal head position exhausts me.
horizontal, no problem. well, a tinge of exhaustion.
19 toilet, third or fourth time today, like. what the .... coffeine related..
19.30
realized i overturned on left leg. unturned .25 mm. overturning led to calfmuscle pain which kinda feels like everyhting, bone, skin muscle, everything hurts. unturning removed pain immediately.
22.30
changed sleeping position. have a good feeling about this. ouch. left calfmuscle starts aching again when bending knee.
sit up.
pain is gone.
lets see if it comes back after stretching.
sleep
Logged

the end of the diary. not own choice and own choice at the same time.
ready to move on. legs are healthy and getting better.

general questions about this experience:
are there good aspects: yes
are there problems: yes
could there be improvements:yes
russianpatient
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« Reply #37 on: July 05, 2015, 08:20:22 PM »

day46
slept. for. once.
a couple of nights insomnia sucks

day47
sleeping is ok
annoyed, had to figure the sleep thing out myself.
tried different positions constantly

48
fractures sites sensatory from walking.
annoyed

49
9.00 bandage change
11.00 x ray
waited for 2 hours forthem to develop the photos.
bone is regenerating
left inner pin-skin  weird making the whole area sore... only 10 of 100 but biting   annoying pain.
ankle pins are sensatory. werenīt two days ago...
reason...too much walking?
or just the consistent surprise every week? new weird pain jumping from one place to another?
later realized yes. just the weekly surprise. goes away after a week though. all of them. probably like more than 10 surprises during the whole process.

50
surprise new discomfort of the week
right ankle pins are making the skin around them sore...
why? because of stretching whole leg when tilting forward repeatedly...stretches the skin around pins
slept well
woke up drained of energy
lower calves have been sore for weeks.
right calf seems ok now.
legs still swell up hard
walking accumulation at 3 hours. left stabilizing pin area bites like crazy but only for 3 seconds, put pulsates/cycles every 5-7 seconds. ....
Logged

the end of the diary. not own choice and own choice at the same time.
ready to move on. legs are healthy and getting better.

general questions about this experience:
are there good aspects: yes
are there problems: yes
could there be improvements:yes
russianpatient
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« Reply #38 on: July 06, 2015, 08:49:58 PM »

51
same old

right leg stabilizor pin, the lowest one, biting today....
walked 8 hours
 washing machine really noisy

52
woke up 5.20
thirsty
right leg tight. from knee all the way down to ankle. feels like a tingle, tickle, tight, uncomfortable stiff something.

53
right tendonds tight.no problem though
same old

54
right tendonds tight.no problem
same old

55
same old
Logged

the end of the diary. not own choice and own choice at the same time.
ready to move on. legs are healthy and getting better.

general questions about this experience:
are there good aspects: yes
are there problems: yes
could there be improvements:yes
russianpatient
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« Reply #39 on: July 06, 2015, 08:51:36 PM »

56
same

57
same old
right ankle sore.
realized that my tibias are deviating outwards maybe 2cm, valgus

58
skin under right ankle sore and swollen.
because of agitation?swelling?what? realized later it was skin tear 1cm. bitin painful 25% in certain positions.
same old
boring

59
right ankle sore
swollen ankles cant move them

60
swollen ankles cant rotate them. can flip up down though.
right anklepin still sore
right fibulafracture feels weird
mornings feel really shtty like often.
irregular sleeping pattern.
feels better at lunch
Logged

the end of the diary. not own choice and own choice at the same time.
ready to move on. legs are healthy and getting better.

general questions about this experience:
are there good aspects: yes
are there problems: yes
could there be improvements:yes
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