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Author Topic: External Hybrid Ex Fix Tibias with Dr PILI in Italy  (Read 33939 times)
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liacara
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« Reply #20 on: September 18, 2015, 04:22:58 PM »

I have forgotten to ask you what kind of surgery you did before LL and your current level pain.
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nottootall
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« Reply #21 on: September 19, 2015, 06:40:58 PM »

liacara

Your situation looks more complicated than mine.
Ask Dott. Pili when you will see him what is that best option for you. I am sure he will give you the best advice.
I have seen a few X-rays in Guichet diaries with fractures in the bone and those patients had to have another operation they had to pay.
Pili assured me that if I would get any complication he would treat me for free. I have a fixed budget and as I am not working now I cannot risk to have to pay for further surgery. 
This is another of the reasons that made me decide to have my LL with Pili.

25 days post op Xray
I don't need painkillers as pain is almost zero




aa
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nottootall
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« Reply #22 on: September 19, 2015, 06:43:03 PM »

I have forgotten to ask you what kind of surgery you did before LL and your current level pain.

I had my face bone broken and had to have it fixed surgically.
My face looks the same as before, thanks good.
It was quite scary, much more than this.

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liacara
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« Reply #23 on: September 20, 2015, 10:05:32 AM »

Face bone? I think it hurted so much!! Cry
Happy to read you are painfree. that's Amazing and helps you a lot. Can you sleep normally?
Your X-rays look fine, please post the next one when you'll do.
yeah, I think every doctor should cover for free any complication that may happen, but if internal nail breaks is a cost to repair it, even for surgeon.

I don't know how to send you a private message. Anyway, hope to read here your news as soon as possible.
Have a nice Sunday  Smiley
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Ike
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« Reply #24 on: September 22, 2015, 02:05:38 AM »

Your doing great man.  Like you am currently going trough leg legthening here in India.  Your going to be just fine as long as you listen to your doctor.  Best of luck and keep it up!
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nottootall
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« Reply #25 on: September 22, 2015, 10:33:17 AM »


Happy to read you are painfree. that's Amazing and helps you a lot. Can you sleep normally?
Your X-rays look fine, please post the next one when you'll do.
yeah, I think every doctor should cover for free any complication that may happen, but if internal nail breaks is a cost to repair it, even for surgeon.

I don't know how to send you a private message. Anyway, hope to read here your news as soon as possible.
Have a nice Sunday  Smiley

Yes I have been sleeping normally so far.
Today a measured myself and I can already notice the 1.5-2 cm increase.
This really makes me feel good.
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nottootall
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« Reply #26 on: September 22, 2015, 10:34:30 AM »

Your doing great man.  Like you am currently going trough leg legthening here in India.  Your going to be just fine as long as you listen to your doctor.  Best of luck and keep it up!

Yes Ike this is what Dr Pili told me too.
I am doing exactly wheat he says and so far so good.

Good luck with your journey

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liacara
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« Reply #27 on: September 25, 2015, 01:57:43 PM »

hey nottootall, how are you?
what's your current gain?
do you know how many surgeries has doctor Pili performed with external and internal device?
 
Hope you feel good.
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nottootall
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« Reply #28 on: October 03, 2015, 12:31:35 PM »

hey nottootall, how are you?
what's your current gain?
do you know how many surgeries has doctor Pili performed with external and internal device?
 
Hope you feel good.

I did not ask him this question.
He said he and his team performs more then 250 operations for limb lengthening in a year. This includes tibia, femur and humerus as they do many patients with acondroplasia too. I did not ask how many he does with internals in a year but he said he uses more externals than internals.
I hope this helps.

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nottootall
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« Reply #29 on: October 03, 2015, 12:43:59 PM »

An update with my journey

It is now 6 weeks since my operation.

I have gained almost 2,5 cm now.
I can walk very well with crutches.
I have no pain the most of the day since my last pin tract went completely clear.
Dr Pili warned me  about ballerina foot and he said it is my only weak point at the moment.
Even thought I am exercising a lot they are just ok!
I hope I don't need to lengthen my Achilles tendons but if this will be necessary I will do it without hesitating.

Anyone had to have this surgery?


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lumiere
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« Reply #30 on: October 03, 2015, 04:29:07 PM »

Hi,

I had the surgery with Catagni and Pili at the beginning of march, I'm now pretty close to the end. . .  I'll be me frames of in one month or two.

Lumiere
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Agrios
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« Reply #31 on: October 03, 2015, 05:01:17 PM »

An update with my journey

It is now 6 weeks since my operation.

I have gained almost 2,5 cm now.
I can walk very well with crutches.
I have no pain the most of the day since my last pin tract went completely clear.
Dr Pili warned me  about ballerina foot and he said it is my only weak point at the moment.
Even thought I am exercising a lot they are just ok!
I hope I don't need to lengthen my Achilles tendons but if this will be necessary I will do it without hesitating.

Anyone had to have this surgery?




Congrats on 2.5cm! If you don't mind me asking what degree can you bend you ankles to (90 degrees would be your foot perpendicular to your tibia).
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February 2014 - Femur precice 2 with Dr. Paley
Lengthened 8cm
Healed 100%

August 2015 - Tibia precice 2 with Dr. Paley
nottootall
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« Reply #32 on: October 04, 2015, 10:14:55 AM »

Hi,

I had the surgery with Catagni and Pili at the beginning of march, I'm now pretty close to the end. . .  I'll be me frames of in one month or two.

Lumiere

Hi Lumiere

I am glad you are at the end of it.

Have you got a diary?
How much did you lengthen?
When did you have your operation?
Did you have to have your Achilles lengthened?
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nottootall
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« Reply #33 on: October 04, 2015, 10:17:27 AM »

Congrats on 2.5cm! If you don't mind me asking what degree can you bend you ankles to (90 degrees would be your foot perpendicular to your tibia).

I do get 90 degrees and maybe abit more.
Dott. Pili said it is still good but wants me to be very focused on keeping at least like this.
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lumiere
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« Reply #34 on: October 04, 2015, 10:50:21 AM »

Quote from: nottootall link=topic=7920. msg106657#msg106657 date=1443953695
Hi Lumiere

I am glad you are at the end of it. 

Have you got a diary?
How much did you lengthen?
When did you have your operation?
Did you have to have your Achilles lengthened?
Hi,

I wrote a diary in another forum,
I lengthened 7. 5 cm
I'm one of the luckies who didn't need the Achilles Lengthening :)
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liacara
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« Reply #35 on: October 05, 2015, 10:14:24 AM »

Congratulation lumiere for your outcome.
Nottootall, I'm happy to read you are pain free. Italians do it better  Cheesy Cheesy
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nottootall
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« Reply #36 on: October 06, 2015, 09:27:07 PM »

Hi,

I wrote a diary in another forum,
I lengthened 7. 5 cm
I'm one of the luckies who didn't need the Achilles Lengthening Smiley

Which forum? I am curious to see your diary.
What did you do to avoid ballerina foot?
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nottootall
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« Reply #37 on: October 06, 2015, 09:31:35 PM »

Congratulation lumiere for your outcome.
Nottootall, I'm happy to read you are pain free. Italians do it better  Cheesy Cheesy

I hope so!!!
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bellazio
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« Reply #38 on: October 07, 2015, 09:23:19 PM »

Congratulation lumiere for your outcome.
Nottootall, I'm happy to read you are pain free. Italians do it better  Cheesy Cheesy

At least when it comes to LL it looks it is true.
Congrats on your achievements.
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nottootall
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« Reply #39 on: October 18, 2015, 01:10:43 PM »

An update on my journey

I am now almost 2 months after surgery

Things are going well.
After exercising I have better ankles and il looks my ballerina foot has disappeared.

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