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Author Topic: Brb6ftTall - Internal Femurs - Dr. Mahboubian - 2017  (Read 9839 times)
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Brb6ftTall
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« on: May 22, 2017, 06:26:26 AM »

Okay so I have been lurking this forum for a couple of years now, looking at my profile registration date will confirm that.  My height was never really a concern when I was younger, I was always on the "shorter side" of the class but I was never the smallest, so I didn't think too much of it.  But one day when I suddenly became height aware (somewhere during maturity I gues?) I knew there was something I had to do, and that I couldn't be short forever.  I was mainly inspired to do Bilateral Femurs with Dr.  Mahboubian from Femur2014's diary, with him seemingly making an actual full recovery.  I also didn't have enough money for Paley (the "safest" option), but reading through his diary convinced me that it was worth getting it done soon with Dr.  M rather than later with Dr.  Paley.

I will not be giving out too many personal details because I want to remain as anonymous as possible, so unfortunately that means no stats or pictures that could reveal myself.  I will say the following, however.

Age: 22
Height: 174. 8 cm (~5'9)
Goal: 182. 86 cm (~6'0) [+7. 6 cm]
Weight: 130 lbs

I know my height may not be short to a lot of you, but I have been around athletes my entire life (as I was one of them. .  didn't continue in college though) and honestly being referred to as "the small one" made me a tad depressed.  With that said, I realize these heights are "rounding" but hey, I highly doubt anyone will call me out for not being 6 ft at my new height when they don't call me out now for saying 5'9.    I also realize I could add 8cm instead of 7. 6 (like femurs did), but after reading many, many posts throughout the years it seemed like going over 7. 6 cm was above the safe limit as far as athleticism is concerned.   I also weighed around 145 lbs prior to surgery, however I stopped working out and getting heavier to make sure I didn't go over 150 lbs (the weight limit for precise) because I was gaining weight pretty quickly.  Anyways, without further ado, here is my own diary!

Day 1 - 5/18/17

After what seemed like forever waiting in the hospital room, I was finally wheeled off to see Dr.  M.  I was admittedly a little nervous about it, but I just kept focusing on what my new height would look like after to keep me going.  Upon saying hello to all the surgical staff, the next thing I knew I was out cold from anesthesia. 
When I woke up I couldn't feel much, but immediately noticed I couldn't move/rotate my legs anymore! That was pretty scary.  I don't remember much of this part because I was still coming off from the anesthesia, but I mainly remember all the staff walking in one by one to say the surgery was successful and they wish me the best.  Most of that day was a blur, but I remember eating hospital meals, getting poked for blood drawings, getting squeezed for blood pressure etc.  throughout the night.  I was given pain meds through an IV, so that was keeping my pain at bay.  Dr.  M reassured me everything went well, but that there were many incisions in my leg muscles so it was crucial that I rest them today and start therapy the next day.

Day 2

This day technically starts somewhere around 3 am I think? It was very difficult to sleep through the night due to all the nurses checking up on me and making other commotion while walking through the hallways and such.  I think the longest amount of sleep I could get was 2 hrs or so before I was woken up again for something.  It got kind of annoying after a while for nurses to be coming in and waking me up, only to ask if I needed some water.  My caretaker could have done that for me if I needed it! I tried to remember these people were just doing their job so I wouldn't get too frustrated. 

Now this day was probably the hardest so far.  My meds from the initial anesthesia were wearing off, so the pain came rushing in.  It definitely hurt but not too bad, probably a 3 or 4 out of 10.  What seriously hurt though was freaking PT.  They came around 8 am, and I had never felt so much pain in my life just trying to stand up.  Getting to the edge of the bed was hard enough, but actually pushing up to get on the walker was one of the hardest things I've ever done.  We had to retry a few times due to the PT's pulling me up but me screaming No! and pushing back down.  Eventually I made it up, but the pain continued through the entire walking process.  I'm talking like 9-10 out of 10 for the whole duration, I was screaming so bad that nurses from the hallway had to check up on me.

After laying back down, I'm at the point where I'm regretting doing the surgery and telling myself my previous height was just fine and all that.  I keep thinking I'm so stupid for willingly putting my body through all of this.  These negative thoughts are soon interrupted by the arrival of Dr.  M, who made me feel sooo much better.  After recounting everything, he assured me I was doing great and every day would get easier and easier.  He also told me I had already officially lengthened 1 mm, yay! The rest of the day wasn't nearly as difficult.  The food tasted as bad as hospital food usually does, and the nurses still wouldn't let me sleep.  The PT however got A LOT better, with the pain only being a 6-7 this time around.  Dr.  M took me off the IV pain meds and I switched to Norco, it was really weird falling asleep with it in my system but it sure did help the pain.

Day 3

Not a whole lot to say about this day, it was the day I got released! Dr.  M saw me first thing in the morning, and he made me as happy as ever.  However, he stretched me out much worse than the PT ever did, and I hadn't taken my pain meds yet.  7-8 pain levels came after he left, and that was truly a hard 30 mins to get through for the pills to kick in.  PT came and it was the best I had ever done, pain was only a 2 or 3 and I was getting off the bed and walking no problem.  I couldn't believe the difference only 1 day had done.  Not much else happened that day, I had breakfast and lunch and PT came one more time (easy yet again), and that was pretty much it.  All my blood tests checked out, and around 5 pm I was dressed and ready to go.  It was somewhat difficult to transition from wheelchair to walker to car, but I managed it rather quickly and I was back in my hotel before I knew it.  Getting me into my bed wasn't that bad, and after taking some more Norco I passed right on out.  At this point, I also took Xeralta for blood thinning.  I woke up a few times throughout the night randomly, due to being in a weird position or being too hot or needing more Norco etc, but after I went back to bed at 3 AM I had the best sleep I've had since before I checked in to the hospital.  It was sooo much better sleeping without all the nurses and tests going on, I was so relieved.

Day 4

Not much to say here either, this is where I am now! I'm scheduled to see Dr.  M next Friday so he can teach me how to lengthen using the machine.  Pain is even better than it was in the hospital, probably due to a combination of me recovering more as well as being in a better atmosphere.  I'm only taking 1 Norco now every 4-5 hours or so instead of 2! I can also finally pee again, I have actually been able to since yesterday but I forgot to mention that was a challenge.  It's okay though, basically just nasty catheter stuff that no one wants to hear anyway! I'm eagerly awaiting the first time I can go No.  2, I haven't done that in a few days due to Norco causing constipation. 




So that's it, I will mainly be chilling, stretching out, and playing video games till the next time I can see Dr.  M.  I realize I didn't include lots of details like where I live ornwhat stretches I did throughout the day, however I didn't think it was important (since most of that is already covered in other diaries in greater detail) but if anyone wants to know those questions feel free to ask and I will answer as best as possible.  I mainly envision this diary as a once or twice a week update max, with my main focus on providing recovery details after surgery is fully done (before and after rod removal).  I noticed that most people might post a few months after the end of consolidation/nail removal, but then stop before a full 100% recovery can be reported.  I plan on not doing that, I would like to come back to you guys a year from now and really let you all know if I'm back to former athleticism or not.  Will try to keep my diary updated as soon as anything major happens, thank you for reading!
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goodlucktomylegs
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« Reply #1 on: May 22, 2017, 11:57:01 AM »

OK please update daily.We are following you.
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Brb6ftTall
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« Reply #2 on: May 23, 2017, 12:24:23 AM »

Alright so I wasn't really planning on updating this too often, but hey if you guys are really following me then I will do my best to update it frequently instead.  I know I lurked over diaries such as femurs2014 and Agrios for years even though they never knew who I was, so if I can help any of you guys out there who were like me then so be it.

Day 5

Today's the best day so far! Although I can definitely say that about each day that passes haha, Dr.  M was right when he said it would get better every day.  I woke up around 8:30 am, 6 hours of uninterrupted sleep was amazing!! Definitely the longest I've had so far.  I never really realized it before, and it might just be me, but I think people with normal legs adjust very slightly throughout the night to not be uncomfortable and wake up.  I'm saying this because lately the only reason I wake up in the middle of the night like I was before is due to the fact that I just get plain uncomfortable staying in the same position I've been in for hours.  I wake up and have to slightly move my heels, or slightly rotate my back (my back probably hurts the most from laying on it for a long time).  Oh and that reminds me, I'm happy to say I'm slowly but surely getting back more leg function!

I will try to describe this as best as possible: Picture a straight leg, and a leg completely bent to where your heel is touching your butt.  The completely straight leg would be what I call "180 degrees" while heel to butt would be "0".  Going off that, "90" would be what I call having your feet straight below your knee, as if you were bending your knee upwards while lying down until you reach the point where your foot is flat.  The rest of the degrees would obviously be in between those numbers.

Now that that's explained, I will describe how I'm doing.  During PT, I usually get my leg elevated and bent from 180-90 degrees, going past that hurts and gets real stiff.  It is expected however due to my muscles still not recovered from the incisions.  In the beginning, I could not or could hardly bend my knee towards me at all.  Earlier today however, I decided to try it and was very happy to see that if I focus, I can bend my knee to around 145 degrees by itself, and can take my hand to guide my tibia inwards to get to 90.  Awesome! The pain isn't bad at all, still at 1 or 2 level max, but the stiffness and exhaustion really kicks in if you don't have a helper.

I was also able to sit up straight for 2 hours today.  The longest I was able to before was 1 hour, and immediately afterwards I was helped in bed (needing help only because I was so exhausted from sitting up straight) and fell asleep quickly.  This time, I only took a short nap (less than 1 hr) and felt great upon waking up, no pain or stiffness whatsoever.  I am still pushing myself to get more function in my leg/knee, but I'm not trying to push too hard since I have no reason to do so this early on.

My appointment with Dr.  M got moved up from Friday to Tuesday, which is tomorrow! I will be taught how to lengthen using the device, and will be told more details about PT and what pills to take on and so on.  Things will start changing for me pretty soon, once your muscles are healed you will regain function, but once the lengthening starts you will really have to keep up with PT to maintain flexibility and have a better recovery. 

Unfortunately still no bowel movement yet.  Peeing has been fine however.  I've slowed my Norco intake to only 1 pill every 6 hours or so instead of 4, and I feel great.  I'm also eating a lot more than I have been, but still haven't really had the urge to go.  I took some laxative pills earlier in the day, and am hoping to have some bowel movement before bed tonight.  I imagine it will be sooo relieving.


That's all so far guys, will update again tomorrow after the appointment with Dr.  M.  I will leave you guys with this message:
For those of you Guests who may be lurking this forum and my diary, I highly encourage you to REGISTER and ask any and all questions you can.  Trust me, even though other diaries besides me may have been super thorough, I still had a crucial question or two I would have loved to have answered but couldn't due to the fact that the authors had already moved on from LL and had stop posting.  Like I said earlier, it my personal mission to be here a year from now and fully inform everyone of my recovery, but the sooner you guys register and post your questions the better.  Please don't do it before it's too late, don't mess up like I did!

Until next time.
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Brb6ftTall
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« Reply #3 on: May 24, 2017, 08:19:51 PM »

I apologize for not updating yesterday, I wanted to do so after my Appt with Dr.  M but by the time I got back, I was really tired from all the driving and fell asleep shortly afterwards.  Anyways, here's what happened.

Day 6

Yet another great night of 6 hours of uninterrupted sleep! I found a new position to lay in, in which pillows are piled up behind my back so that my back isn't on the mattress.  It works great because my back doesn't hurt anymore, so now the only times I randomly wake up is if I get too hot or by having a random muscle spasm during a period the Norco had worn off (the likeliness of this is less and less each day).

Shortly after I woke up, I started getting the urge to go to the bathroom.  I was so happy because I haven't been able to do this in 6 days.  I delayed taking the Norco so it wouldn't have a chance at delaying my bowel movement.  This was now like 9 hours since my last Norco intake, so I was in a bit of pain.  It took me a while but I was able to stand up on my walker (with assistance. .  it's hard without pain meds) and successfully reach my commode.  After a while of sitting there, I finally had some bowel movement! I was sooo happy.  It was a decent amount, and it didn't really hurt as bad as I thought it would.  Once I was cleaned up, I got back up on my walker and got back to the bed.  I immediately took Norco to ease the pain I'd been dealing with, and also took my Xeralta for the day.

Not much else happened after this, so I'll skip to the point where I saw Dr.  M.  I was 15 mins late to him because of traffic, but everything was fine.  The first 10-15 mins of the Appt was his assistants removing all the bandages off of me, I was relieved.  Some of them hurt because they were sticking to my hair, but most of it came off relatively easily.  Once they were all off, Dr.  M came in and examined my incisions.  He said they were all looking great and were healing just fine, so no more bandages were needed.  Nice! He then wanted to examine my range of motion.  It was pretty funny because he just sat there and said "Okay, move your leg. " And I was like "Umm. .  I can't. " Apparently I'm supposed to be able to move my legs better than I have been able to? But it is possible he is confusing me with a patient that has been recovering for a week, since these appointments are usually 8 days after surgery but mine got moved up to only 5 days after.  Regardless, he lifted my leg for me and made me work my hardest to keep it in the air without his assistance.  It was really strenuous, and it looked to me like I wasn't really accomplishing anything.  However, he said I was doing well as he could feel my thigh muscles being utilized during the motions.  He told me to just keep working on this to get these muscles strong again, and told my Care taker to make me do more things by myself.  The last thing he did was give me a prescription for specific vitamin C and D pills, telling me to take them twice a day, and another prescription for physical therapy, which I will use when I return home. 

Once that was done, he left the room and a rep for Precice came in with the lengthening device.  The parts themselves aren't very big, but it came in a decently big box, like the size of a kid's rolling school backpack or suitcase.  He explained to me how to use the device, it was really simple.  Basically I just plug in the console to the wall, and have it set for . 33mm (which it already is by default, and can't be changed) and hit "Start" when I'm ready to lengthen.  I put the other part on a specific part of my femur (that is marked during surgery) and hold it there, and once Start is pressed the magnets do their thing.  You can see the device go from 0mm to . 33mm, it takes a few minutes.  Switch legs when you're done, and once you've done both simply unplug the machine.  It's REALLY easy to use.  However, it does NOT keep track of the total lengthening you have done, so make sure you keep track of that yourself! I am supposed to do 4 sessions of . 33mm for the first 5 days (once every 6 hours, for a total of 1. 33mm) and then slow it down to 3 sessions (once every 8 hours, for a total of 1. 00mm) on the 6th day and onwards.

Now that my appointment was all done, I was driven to Walmart for my new supplements and to pick up some other things, then driven back home.  Even though we only went to these 2 places, we were gone for like 6 hours! LA has crazy traffic. 


Day 7

Not a lot to say, more good sleeping and good stretching.  I've been working more on stretching by myself rather than with my care takers help, and so far I can lift my foot straight in the are from a bent knee position (with lots of strain), but cannot extend it further out to hold or I will come down.  Hoping to get there soon.  You can really feel the soreness after your reps are done, it honestly reminds me of working legs at the gym.  I've also been taking my vitamin C and D twice a day as I've been told to.  Other than that it's all the same really, no new bowel movement yet but I'm not too worried, I'm just happy that it still works after the initial one.  My next appointment with Dr.  M is next Tuesday, almost a week from today.  Will update again by Friday, as that is when I start lengthening.  Can't wait for that!

Until next time.
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Brb6ftTall
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« Reply #4 on: May 28, 2017, 03:47:06 AM »

Day 10

As of writing this, I have lengthened exactly 3.  63 mm! This is including the first 0.  99mm they give you during surgery.   Using the machine is super easy and it takes about 2-3 mins per leg.   I don't feel anything when lengthening either, maybe a little warmth on my femurs but I think that might just be in my head.  

The days are getting better yet still.   I am now able to easily get off and on my walker and wheelchair without any assistance, though it's still difficult for me to get both legs in my bed (my bed is kind of high off the ground though.  .  ) so I need help for the second one.   Stretching is still at the same amount, not gaining anything but that's fine because I'm mostly focused on just retaining right now.   The pain is unnoticeable at most times unless I'm actively moving my leg, and my arms are getting stronger so I'm able to do more and more by myself now.   I've had at least 1 bowel movement every day since the first one, and when I need to go I just get up on my walker and walk to the toilet myself.   I still use the commode on the toilet just so I don't have to sit too far down and also get access to the railings the commode provides, but once I get stronger I'm planning on getting rid of it. 

So yeah, not too much to say about anything, everything's going well and still getting easier.   It is getting kind of demotivating to write long diary entries when no one comments or anything, so I will most likely go back to my original vision of not updating this too frequently and really focusing on just giving details about athletic recovery.   My appointment with Dr.   M is in 2 days, and by that time I should be more than 6mm taller too.   I'll update sometime around then, or if anything major happens before. 

Until next time. 
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LAGrowin
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« Reply #5 on: May 28, 2017, 07:28:34 AM »

Brb6ftTall,

Following you here in SoCal.    So glad to have found your diary!  My motivation and inspiration was also Femurs2014. 

I actually just saw Dr.   M for the 2nd time and decided without reservations this was the doctor for me.   After reading your first few updates,  it is even more solid of a decision. 

I plan on having surgery 1st week in October.

Rooting for you all the way to 6Ft!  I will be anxiously awaiting your every update. 

Wishing you strength and all the motivation you need to breeze through this.  

I have been a lurker like yourself and am sure there are others. 

I am 42 and my goal is your starting height of 5'9".    I am already confident, very sociable, and figure that at 5'10" with shoes on,  I will be in heaven.  

God willing I will be able to write a similar diary as you, and a success like Femurs2014. 

All the best.   Stay positive.
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Brb6ftTall
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« Reply #6 on: May 28, 2017, 08:11:48 AM »

Quote from: LAGrowin link=topic=8081. msg109364#msg109364 date=1495956514
Brb6ftTall,

Following you here in SoCal.     So glad to have found your diary!  My motivation and inspiration was also Femurs2014.  

I actually just saw Dr.    M for the 2nd time and decided without reservations this was the doctor for me.    After reading your first few updates,  it is even more solid of a decision.  

I plan on having surgery 1st week in October. 

Rooting for you all the way to 6Ft!  I will be anxiously awaiting your every update.  

Wishing you strength and all the motivation you need to breeze through this.   

I have been a lurker like yourself and am sure there are others.  

I am 42 and my goal is your starting height of 5'9".     I am already confident, very sociable, and figure that at 5'10" with shoes on,  I will be in heaven.   

God willing I will be able to write a similar diary as you, and a success like Femurs2014.  

All the best.    Stay positive. 

Really glad I could help you man, that is the goal of all this after all haha.  Thanks for the support, I really appreciate it! It's definitely getting to the point where the days seem to breeze by, which is probably what makes it more challenging to keep up with the diary.

Overall though I am definitely very positive, it is an unbelievably great feeling knowing that I am growing a little bit every day, 3 times a day! If you have any questions feel free to ask away on here, or we can arrange a way to talk privately as well.  I actually have a few things I think you should note about Dr.  M, nothing bad or anything but just some things I think you should definitely know going in if you do indeed choose to go with him.  I won't be sharing these thoughts publicly until my surgery is all said and done however, as most of them are not conclusive yet, but I think you may need to be aware of them ahead of time.

Again, thanks for the support, I'll be updating again soon!
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LAGrowin
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« Reply #7 on: May 28, 2017, 09:53:23 AM »

Quote from: Brb6ftTall link=topic=8081. msg109365#msg109365 date=1495959108
Really glad I could help you man, that is the goal of all this after all haha.   Thanks for the support, I really appreciate it! It's definitely getting to the point where the days seem to breeze by, which is probably what makes it more challenging to keep up with the diary. 

Overall though I am definitely very positive, it is an unbelievably great feeling knowing that I am growing a little bit every day, 3 times a day! If you have any questions feel free to ask away on here, or we can arrange a way to talk privately as well.   I actually have a few things I think you should note about Dr.   M, nothing bad or anything but just some things I think you should definitely know going in if you do indeed choose to go with him.   I won't be sharing these thoughts publicly until my surgery is all said and done however, as most of them are not conclusive yet, but I think you may need to be aware of them ahead of time. 

Again, thanks for the support, I'll be updating again soon!


Thanks Brb6ftTall.    I would appreciate any information you can share.  Since Dr.  M is local and I felt comfortable with him.   I decided he was the one.   I'd love to hear what you have to say.  I am new here so I don't know if I can PM.

So glad to hear that you are staying positive with the growth, and that the days are breezing by.   Are you a local resident ?  If you are staying locally and can be of any help whatsoever,  please let me know.   As you say,  after all,  helping others is what this community is all about.

Good vibes your way!    Hopefully the 5 months to full completion comes quickly. 

Let's figure out a way to communicate offline if possible.

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Brb6ftTall
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« Reply #8 on: May 28, 2017, 08:23:31 PM »

I am not a local resident, however I am currently in LA. I can't think of anything I would need right now haha, but I will definitely keep that in mind!

I sent an email to whichever one links to clicking on the mail icon below your name, the hotmail one. We can continue our conversation from there, just respond and let me know it's you. Thanks!
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gurj86
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« Reply #9 on: May 30, 2017, 11:37:22 PM »

Hey

good luck with the surgery.  I like you have been in the forum for a while waiting to finally afford it.

can you advise the total cost?

thanks
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Brb6ftTall
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« Reply #10 on: May 31, 2017, 05:45:04 AM »

Hey

good luck with the surgery.  I like you have been in the forum for a while waiting to finally afford it.

can you advise the total cost?

thanks

Yup, it did indeed take me a few years to save up.

I paid about $72k total for the surgery, hospital fees, and medications (that my insurance covered most of).
I can't really say how much food and possible airfare & hotel stay would cost since that varies, but I'd say having around $75k for everything would possibly do it.
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Brb6ftTall
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« Reply #11 on: June 02, 2017, 08:20:32 PM »

Day 16

Very sorry for the late update! I'm not sure if it was just me or not, but the site was not working for me these past few days. Anyways, I had my Appt with Dr. M yesterday because it got moved from Tuesday to Thursday. The Appt went great! First I had an X-ray to make sure I had been lengthening properly. Dr. M said it looked like I had done about 9mm, which is consistent with what I had written down at the time (it was about 9.24mm or something like that). But the really cool part was that my bone was growing back super fast, so fast that he told me to start lengthening 4 times a day for 1.33mm instead of 3 times a day for 1mm. This is great because not only does that mean I can get the lengthening over with quicker and get my new height sooner, but it is also indicative of how quickly I can consolidate once I'm done lengthening, which means hopefully I'll be able to start walking in no time! I also got all my sutures and stitches removed, so now they're just left to healing on their own.

Now here's what might be a big deal for some of you: this is the last time I will see Dr. M for another year or so (to take the rods out). I am not from California, I am from another state. I am leaving back home tomorrow and will be sending X-rays every 2 weeks to Dr. M to make sure everything is okay. This means I will be doing the entire lengthening process by myself without ever having any type of check ups from him. Of course I would fly in if I needed to in case of an emergency, but assuming there won't be any, I will be doing the therapy and lengthening process in my own state from here on out. This may be dangerous, but I am very excited and I know I will be able to do it. I'm pretty young and healthy, and seeing my recovery process makes me all the more confident that I'll do just fine.

I can raise both my legs higher than I ever could (post surgery) and can extend them in the air farther and hold them for longer. I can get up on my walker and walk for longer and with less pain. I'm only using pain meds every 6 hours, sometimes more like 8-9. My appetite is coming back, I'm able to eat more kinds of food and more of it. My bowel movements are getting more and more normal, and I have at least one a day. I still use the commode on the toilet just because it's hard coming up from being that low, but I can pee standing up like normal. I'm starting to be able to go past 90 while bending my legs, I'm hoping that once I get back home and start therapy I will be able to push this even further. But so far guys, I'm doing great. And all these things get better and better each day. I'm so happy this is going so well.

As of writing, I have currently lengthened 10.56 mm, which is over 1cm. I still have 2 more lengthening sessions today, so it'll be at over 11mm by the end of the day. I can't wait to get my first inch (2.54cm, or 25.4mm) though, that's where the real progress begins. Now that I'm leaving Dr. M, I will not be updating this as often, maybe around every half inch or so unless something noteworthy happens. I will still be here for any questions though, I check the forum quite often so if you have ANY questions please ask! Thank you all for reading this, and I hope my diary so far has been able to give you all a good impression of limb lengthening with Dr.
M.

Until next time.
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« Reply #12 on: June 03, 2017, 06:30:22 AM »

Hi Brb6ftTall,

Thank you for taking the time to update us.  So happy to hear that everything is moving along so well.   I can't tell you how encouraging it is to hear how well you are healing.   

I hope that the increased lengthening doesn't cause too much discomfort due to the impact on the soft tissue as I've read. 

Wishing you a trouble free rest of your journey.   I hope to be in your shoes in a few months.

Please keep us posted on the increased daily lengthening. 

Safe trip home!!  Blessings.

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Brb6ftTall
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« Reply #13 on: June 07, 2017, 11:42:29 PM »

Day 21

I'm at 3 weeks in now, and I definitely have the best improvement yet. There's quite a few things that have changed since the last time I've updated, so here we go.

I made it back to my home state last Friday. I took pain medication once before my first flight and once between my connecting flight, so I wasn't really in pain at any time. Since I couldn't stand, I didn't have to go through the medical detector and was patted down instead. That was pretty nice, I didn't have to explain my rods that way. Upon arriving home, I did something that I believe most people do not recommend: I went up the stairs into my room. There were 14 steps. The first time was rather difficult, but every time after that has been easier. For those wondering, the way I do it is by putting one hand on the stair railing and putting the other hand on a cane to help me up the steps. First I put the cane on the step in front of me, and position my railing hand a little further up than I am to be equal with the cane. Then, I push down on the cane and the railing and lift up my leading foot onto the next step. Finally, I take the other foot that hasn't gone up yet and sort of just scoot it up the step. Rinse and repeat till I get to the top, then I transfer to my walker and go. I was able to do this only a bit more than 2 weeks post op, but I can't say I recommend it. Keep in mind that I am young and weigh less than the weight bearing limit, but It definitely would have been easier to be able to stay downstairs. With that said, going down is a lot easier but still a hassle. And the crazy part is I actually do this 3-4 times a week, it takes me about 10 minutes but it gets easier as my arms and legs get stronger.

Medications: I stopped taking pain meds a few days ago, the only time I take one now is right before PT, that's it. Pain is obviously a bit worse without him, but I'd say it's pretty much just a 1-2 all day with a max of 3 on my left leg (more on that later). I also stopped taking the blood thinner today now that I'm 3 weeks post op, so hopefully I feel better in some way from doing this. Other than that, still taking Calcium and Vitamin D twice a day as instructed by Dr. M.


Physical Therapy: I started PT today, and it was great. I was given two exercises to do at home to increase my quad strength and flexibility. They're pretty basic, the strength one involves straightening my leg and pressing down on a towel below my knee, while the other one has me pulling on my leg with a strap to help bend it further and further. My flexibility for bending my knee was measured at 110 for the left leg and 108 for the right. These definitely aren't great, but I was told to just go as far as I could until I felt any type of discomfort, so it's not like I was actually stretching it really. I can also say that my left leg is lagging almost way behind my right leg. My right leg is pretty independent on most movements and is mostly painless or at a 1 throughout the day, but I actually have to pick up my leg left manually to move it a lot, and if I don't it starts hurting. This has been getting better though, and just a few days ago I was finally able to get in and out the car by myself without having to carry my left leg, so it's clearly getting stronger. Once it catches up to my right though, this will be a breeze since my right really doesn't give me any trouble. I go back to PT again tomorrow, and from here on out I'm scheduled to have it 3 times a week, and after 4 weeks or so I'll move up to 4 times a week to do more intense exercises. Can't wait!

Lengthening: So far, I have lengthened 1.7cm. I will be going back to doing 3 sessions a day now since I was only supposed to do 4 sessions a day for a week, and next week I'll get my X-ray to Dr. M to see how to proceed from there. I'm actually keeping track of my height on the wall now and will be making new marks every week, so that will be fun to see. Also, after speaking with Dr. M and messaging SysOp himself (thank you SysOp!), I have decided that I will instead shoot for the full 8cm. The 0.4cm difference in height isn't all that much to be without, but having it definitely helps to be that much more above 6ft rather than borderline. My body is so far accommodating the lengthening really well, so if it continues like this I (and Dr. M) see no reason why I wouldn't be able to safely do 8cm. But of course, we'll see how it goes!


I believe that's everything now guys. Phew, that took a while to type. As usual, feel free to ask any questions here or via PM, I am open to any and all questions that you think will help in your own LL journey. Thank you for reading, I'll update around my first X-ray next week or if something major happens.

Until next time.
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Joe2000
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« Reply #14 on: June 08, 2017, 12:10:42 AM »

Great update, keep it up!

Did you measure your sitting height and wingspan?
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Brb6ftTall
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« Reply #15 on: June 08, 2017, 02:48:43 AM »

Great update, keep it up!

Did you measure your sitting height and wingspan?

Thank you!

I never measured my sitting height, I personally never thought it was something important lol. My wingspan is about 5'11, 2 inches more than my height. So when it's all said and done my wingspan will be a bit more than 1 inch shorter than my new height.
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LAGrowin
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« Reply #16 on: June 09, 2017, 03:28:58 PM »

Awesome to hear that everything is progressing well Brb6ftTall.   Hopefully you will reach the full 8cm to make this journey that much more fulfilling!

Extremely happy to see this update.    It gives many of us on here encouragement to move forward into our own journeys.   

Your first hand experience in invaluable.

Blessings!  All the best.    Can't wait for the next update. 

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Brb6ftTall
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« Reply #17 on: June 09, 2017, 04:29:33 PM »

Awesome to hear that everything is progressing well Brb6ftTall.   Hopefully you will reach the full 8cm to make this journey that much more fulfilling!

Extremely happy to see this update.    It gives many of us on here encouragement to move forward into our own journeys.   

Your first hand experience in invaluable.

Blessings!  All the best.    Can't wait for the next update. 



Thank you! And yup, shooting for that 8cm now. I'll probably update sometime next week when I get my first inch, stay tuned!
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Brb6ftTall
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« Reply #18 on: June 17, 2017, 06:56:39 AM »

Day 30

My first inch!! I'm still just a bit under 5'10, but I'm definitely closer than I've ever been compared to 5'9. Still have a little more than 2 inches to go, the extra 0.4cm in the end should make up for being a bit under every inch lol. But I'm so excited, 1 inch officially down!

Not much has changed as far as how I'm doing. PT has been great, it's probably my favorite part of the day. My left leg has definitely been getting stronger and catching up to the right, but it still has some ways to go. Whenever I try and stand, I can feel resistance in my left knee not wanting to straighten, so I have put conscious effort on it to be straight. The longer I walk and stand however, the quicker it goes away. And lately it's been going away quicker than normal, most likely from my PT progress. I've been getting pretty lazy with the stretches I'm supposed to be doing at home, but that's only because I've been feeling fine and feeling like I don't really need them.

I sent my X-Rays to Dr. M yesterday, and he replied within a couple of hours. He says my bone growth looks great and to stay at the same lengthening rate, so unfortunately I couldn't go back up to 4 sessions a day but it's definitely better than going less than 3. In conclusion, not really much to say here. I'm doing great so far guys, pain is mostly at a 0 throughout the day and my leg functions are getting easier and easier as my legs get stronger. Thank you all for reading so far, hopefully I'll have something more significant to report before my next half inch or so, but until then please feel free to ask questions!
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LAGrowin
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« Reply #19 on: June 19, 2017, 03:02:14 PM »

Nice to hear that the journey continues to be a positive one and that you are progressing without issue.  It is motivating for those of us who will hopefully be in your position soon.

Although I realize it has only been 30 for you.  How has muscle loss in the legs and glutes been?

Keep up with the stretches, it seems this is key to being pain and issue free as you start nearing the 2inch mark and beyond.

Congratulations on reaching inch 1!! Do you feel any difference as you stand or not noticeable enough yet?

All the best.    Although it is quiet around here,  please continue to keep us posted.   I'm sure there a a number of lurkers around who truly benefit from your updates.

Thank you. 

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